News
Announcing Nurse Patti's Blog!
- Details
- Last Updated: 19 July 2021 19 July 2021
We are delighted to announce that Patti Purcell, M.Ed. BSN, RN, will be writing a blog for our website on children and ME/CFS. She brings 30 years of experience, 26 years as a school nurse, to the topic. Check out her latest posts.
Young Adult Support Group for those with ME/CFS, FM, Lyme, Long Covid, and Chronic Illness - Jan 2023
- Details
- Last Updated: 23 December 2022 23 December 2022
Young Adult Support Group
for those with ME/CFS, FM, Lyme, Long Covid, and Chronic Illness
Tuesday, Jan. 10th, at 3:30 P.M. ET
NEW! Saturday, Jan. 28th, at 10:30 A.M. ET
These drop-in Zoom Support Groups are interactive and provide a safe space for patients to share stories and experiences, ask questions, and offer one another support.
The groups are run by Kerry Lang, LMHC. Kerry is a MA licensed mental health counselor with experience leading groups and workshops for those with chronic illness, specifically those with Lyme disease, and more recently Long COVID and ME/CFS.
Please Note: Due to professional licensing requirements, we are only able to offer this program to Massachusetts residents.
What age is considered Young Adult?
Anyone over the age of 18 who self-identifies as a young adult, either through age or via the life challenges typically experienced by this population. Relevant topics of this group are challenges with college/higher education, starting a career, housing challenges, dating and/or starting a family, and social challenges.
This groups are free for members. You are welcome to register for one or both sessions. There is a $10 suggested donation for those that can afford to contribute. A contibution of $25 or more will include annual membership.
REGISTER FOR THE JAN. 10th YOUNG ADULT GROUP
REGISTER FOR THE JAN. 28th YOUNG ADULT GROUP
Sunday Conversations - April 16, 2023
- Details
- Last Updated: 24 May 2023 24 May 2023
"What Every Provider Should Know About ME/CFS (and how their patients can help them learn)"
Sunday, April 16, 2023, 4 p.m. Eastern Time
Chair, Dept. of Family Medicine
Frank H. Netter School of Medicine at Quinnipiac University
In a combination presentation and interview, Dr. Selinger will talk about how he teaches medical students about ME/CFS, and present the key facts he would like all providers to know. He will also address the challenges of patients face if their providers are not well-informed about ME/CFS. This program is also relevant to other conditions with symptoms similar to ME/CFS.
Recording and other resources
- Recording of the event (includes a link to the Golden Girls clip)
- Slides from the presentation
- C W Lapp, 2019, Initiating Care of a Patient With Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)
- Diagnostic algorithm for ME/CFS, 2015 from the 2015 Institute of Medicine (now National Academy of Medicine)
- B M Carruthers, et al., 2011, Myalgic encephalomyelitis: International Consensus Criteria
- L. Bateman, et al., 2021, Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Essentials of Diagnosis and Management
Read more: Sunday Conversations - April 16, 2023
MECFS and Long COVID: Emerging Similarities and Why it Matters
- Details
- Last Updated: 06 November 2022 06 November 2022
Massachusetts ME/CFS and FM Association Presents:
ME/CFS and Long COVID: Emerging Similarities and Why it Matters
Featuring Dr. Anthony L. Komaroff
Saturday, October 22, 2022
1:00 - 3:00 P.M. ET on Zoom
Dr. Komaroff will talk about “The Emerging Parallels Between ME/CFS and Long COVID”. He will describe not only how the symptoms are similar but also how the two conditions share many of the same physiologic abnormalities and the opportunity Long Covid provides to advance our understanding of ME/CFS and to support clinical trials.
Anthony Komaroff, MD, is the distinguished Simcox-Clifford-Higby Professor of Medicine at Harvard Medical School and Senior Physician at Brigham and Women’s Hospital in Boston. He has published over 230 research articles and two books. From 1997-2015 he was editor in chief of the Harvard Health Publications Division of Harvard Medical School, the division responsible for disseminating all of the medical school’s health information for the general public. He has been publishing research papers on myalgic encephalomyelitis (ME) since the late 1980s, and currently serves on the National Institutes of Health’s advisory council for ME/CFS research.
This event is a part of the Association's 2022 Annual Meeting of the Membership.
Recording of event in sections:
MassME Annual Report of the Membership
Dr. Komaroff's introduction and special tribute for his decades of service to the ME/CFS community
Dr. Komaroff - Main Presentation
Break Video - Letters to MassME
YouTube Playlist of All Sections