Rainbow at shoreline

The Massachusetts CFIDS/ME & FM Association, a 501(c)3 founded in 1985, exists to meet the needs of patients with CFIDS (Chronic Fatigue and Immune Dysfunction Syndrome, also known as Chronic Fatigue Syndrome), ME (Myalgic Encephalomyelitis) or FM (Fibromyalgia), their families and loved ones. The Massachusetts CFIDS/ME & FM Association works to educate health-care providers and the general public regarding these severely-disabling physical illnesses. We also support patients and their families and advocate for more effective treatment and research.

Researchers/scientists/MDs - Sign up to speak with Ronald W. Davis, Ph.D.

If you are a scientist, researcher, or M.D. interested in ME/CFS, you can sign up for a 30-minute one-on-one conversation with renowned researcher Ronald W. Davis, Ph.D. Appointments are being made for Wednesday, March 28, 2018. Alternate dates available, if necessary. Please sign up by March 20, 2018.

Get more information and Register here

Download the flyer


 

Special Invitation

Massachusetts Department of Public Health
in conjunction with
Massachusetts CFIDS/ME and FM Association

 Invites all public health and healthcare professionals, scientists and researchers to:

A SCREENING OF

 

"UNREST"

A Sundance and GlobeDocs (Boston Globe) award-winning film now short-listed for an Oscar

“Riveting…equal parts medical mystery, science lesson, political advocacy primer and even a love story.” -- San Francisco Chronicle

 

Deborah Becker, NPR/WBUR's Senior Correspondent & Host moderates a post-film panel with Film Director Jennifer Brea 
and a scientific researcher and a healthcare professional

 

What: The film UNREST sheds light on the hidden lives of 1-2.5 million Americans (28,000 in MA) disabled by ME/CFS, a chronic, debilitating, multi-system illness that affects the body's immune, neurologic, vascular, respiratory and energy production systems. (Film trailer here.)
When:  Tuesday, March 27, 2018, at 5:45 - 8:15 pm. (Doors open at 5 p.m. Light supper will be provided.)
Where:  State Public Health Laboratory, 305 South Street, Jamaica Plain, MA
Who:  Limited to publilc health and healthcare professionals, scientists and researchers. 

Pre-registration is strongly encouraged to reserve your seat and facilitate access to the building.

Register now

Download the announcement flyer

Download the full text flyer

 

Get more information about the event here.

About the film:  The UNREST film director was so severely affected by ME/CFS, she had to direct the movie mostly from bed. "Twenty-eight year-old Jennifer Brea is working on her PhD at Harvard and months away from marrying the love of her life when she gets a mysterious fever that leaves her bedridden and looking for answers. Disbelieved by doctors yet determined to live, she turns her camera on herself and discovers a hidden world of millions confined to their homes and bedrooms."

Recent media attention: Boston Globe, NPR's Here and Now, NPR's Science Friday, Cosmopolitan, Today Show, New York Times and much more

 

Massachusetts Dept. of Public Health invites you to a screening of UNREST


UnrestPoster smallThe Massachusetts Department of Public Health and the Massachusetts CFIDS/ME & FM Association are pleased to host a special showing of the Oscar contender and Sundance award-winning documentary, UNREST, by Jennifer Brea on Tuesday, March 27, 2018 at the State Laboratory, 305 South St, Jamaica Plain, MA 02130.

This program is for all public health and healthcare professionals, scientists and researchers.

The film will be followed by a panel discussion hosted by NPR/WBUR's Senior Correspondent and Host Deborah Becker

Jennifer Brea, the filmaker, will attend the event in person, participate in the post-film panel, and be available to answer questions.

The program will begin at 5:45 p.m.and will end around 8:15 p.m. Doors open at 5 p.m. and a light supper will be provided. The theater is wheelchair accessible. Parking is free.

Synopsis: When Harvard Ph.D. student Jennifer Brea is struck down by a fever that leaves her bedridden, she sets out on a virtual journey to document her story as she fights a disease that medicine forgot (1 hour and 37 minutes).

Watch the film trailer. 

Pre-registration is strongly encouraged to ensure your seat and to facilitate access to the building.

 

Register now

 Please help us publicize this event. Download and print the flyer.

Read more: Massachusetts Dept. of Public Health invites you to a screening of UNREST

Annual Meeting November 2017

The Massachusetts CFIDS/ME & FM Association welcomed Linda Tannenbaum, President/CEO of Open Medicine Foundation, as the keynote speaker at our Fall 2017 Meeting & Lecture, held on Saturday, November 4, 2017 at the Newton-Wellesley Hospital. 

Linda presented an update on Open Medicine Foundation’s revolutionary research and what OMF and others are doing to increase awareness, education and support. This was an End ME/CFS Worldwide Tour event.

For those who could not attend in person, here are Linda's slides and here is a video of the same talk which she gave in New York a few days before she spoke with us.

Massachusetts Congressional delegation supports ME/CFS patients

The entire Massachusetts Congressional delegation (two Senators and all nine Representatives) signed a statement of support for ME/CFS patients which was shown on the occasion of the screening of the documentary film “Unrest” on November 12, 2017 at the Regent Theatre in Arlington, MA. Our delegation's support for patients with ME/CFS was projected on the big screen at the event, which was attended by more than 360 healthcare professionals, ME/CFS patients, families, and supporters from Massachusetts and New England (VT, ME, CT, RI).  We were proud to announce that Massachusetts is the first state that has had such a statement from every member of its congressional delegation.

Read more: Massachusetts Congressional delegation supports ME/CFS patients

Notice about names

The Massachusetts CFIDS/ME & FM Association would like to clarify the use of the various acronyms for Chronic Fatigue Syndrome (CFS), Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS) and  Myalgic Encephalomyelitis (ME) on this site. When we generate our own articles on the illness, we will refer to it as ME/CFS, the term now generally used in the United States. When we are reporting on someone else’s report, we will use the term they use. The National Institutes of Health (NIH) are currently using ME/CFS. The Centers for Disease Control and Prevention (CDC) are calling the illness CFS.

Until there is consensus on a name for the illness, the Massachusetts CFIDS/ME & FM Association name will not change.