The Massachusetts CFIDS/ME & FM Association, a 501(c)3 founded in 1985, exists to meet the needs of patients with CFIDS (Chronic Fatigue and Immune Dysfunction Syndrome, also known as Chronic Fatigue Syndrome), ME (Myalgic Encephalomyelitis) or FM (Fibromyalgia), their families and loved ones. The Massachusetts CFIDS/ME & FM Association works to educate health-care providers and the general public regarding these severely-disabling physical illnesses. We also support patients and their families and advocate for more effective treatment and research.
News & Events
- Last Updated: 12 April 2017 12 April 2017
Llewellyn King talks with members of our Association in his ME/CFS Alert video series, recorded on March 24, 2017.
The work of the Massachusetts CFIDS/ME & FM Association | Episode 86, published on March 29, 2017
ME/CFS Diagnosis, children with ME, and the medical community with Alan Gurwitt, M.D., published on April 12, 2017
More to come!
- Last Updated: 28 February 2017 28 February 2017
"I will be your advocate for more research" Massachusetts senator Ed Markey promised an ME patient at a Town Hall meeting on Feb. 23rd.
Read the story, view the video clip, and then call Senator Markey's office (202-224-2742) to thank him for promising in Northampton to advocate for M.E. on Capitol Hill. If you are an ME patient let them know. If you are a Massachusetts resident be sure to say that. Our Association will be following up with Senator Markey to let him know how he can help!
- Last Updated: 15 February 2017 15 February 2017
"What happens when you have a disease doctors can't diagnose," film-maker and ME/CFS advocate Jen Brea's TED talk, was filmed in June 2016 and has recently been made available for viewing (subtitles in 10 languages!). This is 17 minutes of gripping power. Watch it now!
- Last Updated: 08 December 2016 08 December 2016
The video of "ME/CFS: A Surge of Interest and Knowledge", the lecture by Dr. Anthony Komaroff, Harvard Medical School Professor, Clinician and Researcher, presented to Massachusetts CFIDS/ME & FM Association on Nov. 5, 2016, is now posted.
The lecture is 63 minutes.
The Q&A is 34 minutes.
- Last Updated: 02 December 2016 02 December 2016
Eleven patient organizations, including Massachusetts CFIDS/ME & FM Association, and 52 individual advocates have called for CDC to remove recommendations for GET (Graded Exercise Therapy) and CBT (Cognitive Behavioral Therapy) from the CDC's ME/CFS website.
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Notice about names
The Massachusetts CFIDS/ME & FM Association would like to clarify the use of the various acronyms for Chronic Fatigue Syndrome (CFS), Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS) and Myalgic Encephalomyelitis (ME) on this site. When we generate our own articles on the illness, we will refer to it as ME/CFS, the term now generally used in the United States. When we are reporting on someone else’s report, we will use the term they use. The National Institutes of Health (NIH) are currently using ME/CFS. The Centers for Disease Control and Prevention (CDC) are calling the illness CFS.
Until there is consensus on a name for the illness, the Massachusetts CFIDS/ME & FM Association name will not change.