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ME/CFS: Changing the Narrative - Recording Available
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- Last Updated: 03 November 2023 03 November 2023
Ed Yong is a celebrated science journalist who cares deeply about accurate, nuanced, and empathetic reporting; clear and vivid storytelling; and social equality. His coverage of ME/CFS and Long COVID for The Atlantic has been groundbreaking, and has contributed to a changing public perception of these illnesses, moving us toward a public health agenda that recognizes the serious nature and commonalities of infection-associated chronic conditions, and supports advances in research and clinical care.
Mr. Yong shared with us how he came to the subject of ME/CFS and long COVID and what has motivated him to dig so deeply and tenaciously into them. He explained how he chose sources to interview and how he prepares for those interviews. We heard his thoughts on what is yet to be explored about ME/CFS from a journalistic perspective, and how science journalism contributes to changing perceptions.
Mr. Yong is a Pulitzer Prize-winning science journalist on staff at The Atlantic. In addition to his work for The Atlantic, Yong’s writing has been featured in National Geographic, The New Yorker, Wired, The New York Times, Nature, New Scientist and Scientific American. He is the author of two New York Times bestsellers—An Immense World, about the extraordinary sensory worlds of other animals; and I Contain Multitudes, about the amazing partnerships between animals and microbes.
Visit Ed Yong's website to learn more and sign up for his newsletter.
This event was part of the Association's 2023 Annual Meeting of the Membership.
Read more: ME/CFS: Changing the Narrative - Recording Available
Sunday Conversations CANCELLED for 9/17
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- Last Updated: 13 September 2023 13 September 2023
Due to a family emergency, our speaker for the Sept 17 Sunday Conversation, Dr. Jason Maley, has had to cancel. Dr. Maley has graciously offered to reschedule for a future Sunday Conversation.
Please join us on Saturday, Oct. 28 1 pm ET, for our MassME Annual Event, ME/CFS: Changing the Narrative, with journalist and science writer Ed Yong as our featured speaker. This is a virtual event and is free for members. Registration for this event will be open soon.
Sunday Conversations will resume in November.
We are sorry for the inconvenience and send best wishes to Dr. Maley.
Young Adult Support Group for those with ME/CFS, FM, Lyme, Long COVID, and Chronic Illness - Fall Session 2023
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- Last Updated: 08 September 2023 08 September 2023
Young Adult Support Group for those with ME/CFS, FM, Lyme, Long COVID, and Chronic Illness
*Please Note: Due to professional licensing issues, you must be a Massachusetts resident to attend this group.
Join us on Monday nights @ 7:00 pm and Wednesday afternoons @ 3:30 pm ET.
This drop-in Virtual Support Group is interactive and provides a safe space for patients to share stories and experiences, ask questions, and offer one another support.
In an effort to streamline the registration process, we are offering one registration for the entire Fall Session. Once registered, you are welcome to attend as many meetings as you like.
Fall Session Dates:
Monday, September 11th, @ 7:00 pm
Wednesday, September 20th @ 3:30 pm
Monday, October 2nd @ 7:00 pm
Wednesday, October 18th @ 3:30 pm
Monday, November 13th, @ 7:00 pm
Wednesday, November 29th @ 3:30 pm
This group is free for members, with any donations to offset costs welcome. A contribution of $25 or more will include annual membership.
What age is Young Adult?
Anyone over the age of 18 who self-identifies as a young adult, either through age or via the life challenges typically experienced by this population. Relevant topics of this group are challenges with college/higher education, starting a career, housing challenges, dating and/or starting a family, and social challenges.
To Register, please fill in the form or confirm your pre-filled information below, and then click the Register button.
| REGISTER FOR THE YOUNG ADULT GROUP - FALL SESSION |
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Notice about names
The Massachusetts ME/CFS & FM Association would like to clarify the use of the various acronyms for Chronic Fatigue Syndrome (CFS), Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS) and Myalgic Encephalomyelitis (ME) on this site. When we generate our own articles on the illness, we will refer to it as ME/CFS, the term now generally used in the United States. When we are reporting on someone else’s report, we will use the term they use. The National Institutes of Health (NIH) and other federal agencies, including the CDC, are currently using ME/CFS.
Massachusetts ME/CFS & FM Association changed its name in July, 2018, to reflect this consensus.