*SPECIAL REQUEST FOR MA RESIDENTS*
Join us in making our voices heard!
With the appearance of Long COVID, other illnesses like ME/CFS, POTS, Dysautonomia, and Fibromyalgia are finally getting more attention and understanding. Medical professionals and people in government are recognizing the links between Long COVID and other infection-associated chronic conditions.
Now is the time for us to start approaching our legislators who decide what issues will be a focus and what causes will receive funding. There are MassME members who have already written to their state legislators and met with them, or spoken to legislative aides.
You can make a difference!
Read more: Advocacy - Call to Action!
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Last Updated: 05 March 2024 05 March 2024
March 2024
In this month's newsletter:
- Upcoming Events
- Sunday Conversations
- Young Adult Support Group - Winter
- Advocacy Week
- Newsworthy Events and Links
Read more: 2024-03 March Newsletter
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Last Updated: 01 March 2024 01 March 2024
“Dysautonomias 101: More Than Just POTS”
Peter Cariani, Ph.D.
“Dysautonomias” refers to the generic term encompassing all disorders of the autonomic nervous system. In this edition of Sunday Conversations, Peter Cariani will give a brief overview of the autonomic nervous system and what can go wrong. He will also describe the role of dysautonomias in ME/CFS, FM, and other chronic conditions, what causes these conditions to be self-sustaining, what medical specialties treat dysautonomias, and add his own thoughts about diagnosis and treatment.
Hayla Sluss, Ph.D., is Moderator and Discussant.
A recording will be available after the event.
Read more: Sunday Conversations March 2024
Notice about names
The Massachusetts ME/CFS & FM Association would like to clarify the use of the various acronyms for Chronic Fatigue Syndrome (CFS), Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS) and Myalgic Encephalomyelitis (ME) on this site. When we generate our own articles on the illness, we will refer to it as ME/CFS, the term now generally used in the United States. When we are reporting on someone else’s report, we will use the term they use. The National Institutes of Health (NIH) and other federal agencies, including the CDC, are currently using ME/CFS.
Massachusetts ME/CFS & FM Association changed its name in July, 2018, to reflect this consensus.
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