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Sunday Conversations - January 22, 2023
- Details
- Last Updated: 28 January 2023 28 January 2023
Selected readings from The Long Haul, with Ryan Prior and Cynthia Adinig
Sunday, January 22, 2023, 4 p.m. EST
Thank you for joining us as journalist and ME patient Ryan Prior read excerpts from his new book, The Long Haul: Solving the Puzzle of the Pandemic’s Long Haulers and How They Are Changing Healthcare Forever, released November 2022 by Post Hill Press. He was joined by marketing specialist and Long COVID advocate Cynthia Adinig, whose experiences obtaining treatment are discussed in the book. Rivka Solomon, long-time ME/LC advocate and MassME member, hosted the meeting.
Following the readings, Ryan and Cynthia responded to questions and comments from Rivka and from the audience. The entire program lasted about 75 minutes.
Click here to view a recording of the presentation.
Read more: Sunday Conversations - January 22, 2023
Young Adult Support Group for those with ME/CFS, FM, Lyme, Long Covid, and Chronic Illness - Jan 2023
- Details
- Last Updated: 23 December 2022 23 December 2022
Young Adult Support Group
for those with ME/CFS, FM, Lyme, Long Covid, and Chronic Illness
Tuesday, Jan. 10th, at 3:30 P.M. ET
NEW! Saturday, Jan. 28th, at 10:30 A.M. ET
These drop-in Zoom Support Groups are interactive and provide a safe space for patients to share stories and experiences, ask questions, and offer one another support.
The groups are run by Kerry Lang, LMHC. Kerry is a MA licensed mental health counselor with experience leading groups and workshops for those with chronic illness, specifically those with Lyme disease, and more recently Long COVID and ME/CFS.
Please Note: Due to professional licensing requirements, we are only able to offer this program to Massachusetts residents.
What age is considered Young Adult?
Anyone over the age of 18 who self-identifies as a young adult, either through age or via the life challenges typically experienced by this population. Relevant topics of this group are challenges with college/higher education, starting a career, housing challenges, dating and/or starting a family, and social challenges.
This groups are free for members. You are welcome to register for one or both sessions. There is a $10 suggested donation for those that can afford to contribute. A contibution of $25 or more will include annual membership.
REGISTER FOR THE JAN. 10th YOUNG ADULT GROUP
REGISTER FOR THE JAN. 28th YOUNG ADULT GROUP
Thank You!
- Details
- Last Updated: 06 December 2022 06 December 2022
On behalf of the Massachusetts ME/CFS & FM Association, THANK YOU FOR YOUR SUPPORT. You will receive an email detailing your contribution.
As you may know, the Massachusetts ME/CFS & FM Association is one of the oldest all-volunteer patient organizations in the United States. Founded in 1985, our Association is committed to serving the needs of ME/CFS and Fibromyalgia patients, their families, and their loved ones. All donations received are used to provide the resources needed in order to accomplish this important work.
Membership benefits include support groups, free entrance to all events and lectures sponsored by the Association, and travel support for advocacy and conferences. Additionally, members automatically receive our e-newsletter which is generally published on a monthly basis.
As a member, please feel free to Contact Us at any time with any questions or issues you might have. In the event you need patient services, we will refer your request to one of the volunteers who work so hard to help our members as best they can.
We are always looking for volunteers to help, for as little as two hours per month. If you have an interest in this area, please visit our website's Volunteer page and let us know how you or your family members can participate.
Again, thank you for your support of the Association.
Together We Can Make A Difference!
Our EIN is 04-3014644. All contributions are tax-deductible to the extent provided by law. No goods or services were provided in return for a contribution. A printed copy of your emailed receipt can serve as receipt for tax purposes.
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Notice about names
The Massachusetts ME/CFS & FM Association would like to clarify the use of the various acronyms for Chronic Fatigue Syndrome (CFS), Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS) and Myalgic Encephalomyelitis (ME) on this site. When we generate our own articles on the illness, we will refer to it as ME/CFS, the term now generally used in the United States. When we are reporting on someone else’s report, we will use the term they use. The National Institutes of Health (NIH) and other federal agencies, including the CDC, are currently using ME/CFS.
Massachusetts ME/CFS & FM Association changed its name in July, 2018, to reflect this consensus.