Sunday Conversations - January 21, 2024

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Last Updated: 27 January 2024 27 January 2024

"It's not 'All In Your Head' "
Multi-Modal Healing with Judy Tsafrir

Sunday, January 21, 2024, 4 p.m. Eastern Time

Judy Tsafrir, MD

When a patient consults a physician and reports symptoms that refer to multiple unrelated organ systems which do not fit with known patterns or conditions, and when the laboratory tests that are conventionally run do not reveal any abnormalities, the conclusion is reached that they should see a psychiatrist. They are told that they are suffering from stress; that they are depressed or anxious. The implication is that their condition is psychosomatic; meaning that their emotions are manifesting as physical symptoms. This is a very invalidating experience that adds insult to injury.

Read more: Sunday Conversations - January 21, 2024

In Memoriam - Ronald G. Tompkins

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Last Updated: 03 February 2022 03 February 2022

It is with great sadness that we learned of the sudden passing of Ron Tompkins, MD, ScD. The Massachusetts ME/CFS & FM Association was fortunate to be able to collaborate on a number of projects with Ron, and he was always extraordinarily generous with advice and guidance. The Massachusetts ME/CFS community has lost a strong ally and a good friend.

Read more: In Memoriam - Ronald G. Tompkins

Young Adult Support Group for those with ME/CFS, FM, Lyme, Long COVID, and Chronic Illness - Fall Session 2023

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Last Updated: 08 September 2023 08 September 2023

Young Adult Support Group for those with ME/CFS, FM, Lyme, Long COVID, and Chronic Illness

*Please Note: Due to professional licensing issues, you must be a Massachusetts resident to attend this group.

Join us on Monday nights @ 7:00 pm and Wednesday afternoons @ 3:30 pm ET.

This drop-in Virtual Support Group is interactive and provides a safe space for patients to share stories and experiences, ask questions, and offer one another support.

In an effort to streamline the registration process, we are offering one registration for the entire Fall Session.  Once registered, you are welcome to attend as many meetings as you like.

Fall Session Dates:

Monday, September 11th, @ 7:00 pm

Wednesday, September 20th @ 3:30 pm

Monday, October 2nd @ 7:00 pm

Wednesday, October 18th @ 3:30 pm

Monday, November 13th, @ 7:00 pm

Wednesday, November 29th @ 3:30 pm

This group is free for members, with any donations to offset costs welcome. A contribution of $25 or more will include annual membership.  

What age is Young Adult?

Anyone over the age of 18 who self-identifies as a young adult, either through age or via the life challenges typically experienced by this population. Relevant topics of this group are challenges with college/higher education, starting a career, housing challenges, dating and/or starting a family, and social challenges.

To Register, please fill in the form or confirm your pre-filled information below, and then click the Register button.

Sunday Conversations - November 19, 2023

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Last Updated: 27 January 2024 27 January 2024

"What Sociology and the Illness Narratives Can Teach Us About Living with Chronic Illness"

Sunday, November 19, 2023, 4 p.m. Eastern Time

Helen McGunnigle

Helen McGunnigle is a graduate of Hampshire College where she studied pre-medical sciences and conducted an ethnographic study of college students living with contested chronic illness (including chronic or post-treatment Lyme disease syndrome, ME/CFS, and fibromyalgia) for her senior thesis. In this Sunday Conversation, Helen highlighted the findings from this research project, exploring the early histories of these illnesses and what exactly makes them so contested. Following the discussion, she lead a conversation on the impacts of living with chronic illness.

Read more: Sunday Conversations - November 19, 2023

New Monthly Discussion Group: Looking at How ME/CFS Research Might Apply to our Care

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Last Updated: 02 December 2021 02 December 2021

 On Tuesday, December 14, from 5-6:30pm we are launching a new monthly zoom discussion group entitled: 

Looking at How ME/CFS Research Might Apply to our Care.

Click here for more details!