Sunday Conversations
Sunday Conversations - August 21, 2022
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- Last Updated: 30 August 2022 30 August 2022
Join MassME for a Special Edition of Sunday Conversations! We are looking forward to meeting you "in person"!
Read more: Sunday Conversations - August 21, 2022
Sunday Conversations - June 19, 2022
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- Last Updated: 27 July 2022 27 July 2022
"A whole-person health approach to Myalgic Encephalomyelitis/Chronic Fatigue Syndrome – Lessons for Post-COVID conditions”
Whole-person health is the term the NIH uses for Integrative medicine approaches.
Presented by Maria Vera Nunez, M.D.
Sunday, June 19, 2022, 4 p.m. ET
This program was presented jointly with the New Jersey ME/CFS Association.
Dr. Maria Vera Nunez has been specializing in the treatment of people living with ME/CFS for more than 20 years, having originally worked with Dr. Nancy Klimas at Nova Southeastern University’s Institute for Neuro-Immune Medicine for 7 years. Dr. Vera uses a whole-person health approach to evaluate patients with chronic, multi-system conditions, including ME/CFS and Long COVID. She uses advanced functional medicine testing to personalize treatments. She strives to create a partnership with her patients, considering their preferences and empowering them to acquire skills to support their healing process.
Dr. Vera is a Board-certified Internal Medicine and Integrative Medicine physician, a Certified Functional Medicine Practitioner, and has a Master of Science degree in Medical Informatics. She was an Assistant Professor at Nova Southeastern University’s Institute for Neuro-Immune Medicine, a national referral center for ME/CFS cases, for 7 years. Currently, she is an attending physician at the Whole Psychiatry and Brain Recovery Center in Maryland and a Research Assistant Professor at the Medical University of South Carolina.
This is a virtual presentation via Zoom.
Video links:
Full event
Whole Person Health
Patient Perspective
Q&A
Sunday Conversations - May 15, 2022
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- Last Updated: 31 May 2022 31 May 2022
"Fibromyalgia”
Presented by Paul Monach, M.D.
The presentation is specific to Fibromyalgia (FM), but many patients with chronic complex diseases have symptoms or also a diagnosis of FM.
Sunday, May 15, 2022, 4 p.m. ET
Paul Monach, M.D., is Chief of the Rheumatology Section in the Boston VA Healthcare System, and an Associate Professor at Harvard Medical School. He has a PhD in immunology and completed residency and a rheumatology fellowship at Brigham and Women’s Hospital (BWH) in Boston. He is a member of the Cooperative Studies Program Coordinating Center at Boston VA Healthcare System.
This is a virtual presentation via Zoom.
Video links:
Playlist: https://youtube.com/playlist?list=PLz31KwoUbYrE9Uk71UjIDLGy2v6QVjwcN
Full event: https://youtu.be/cJxJLs1zLWM
Part 1-Fibromyalgia overview: https://youtu.be/PXkznGEg0ak
Part 2-Patient voices: https://youtu.be/IIFwzB-1CJQ
Part 3-Q&A: https://youtu.be/Ej7Ozno4oHo
Resources:
Fibromyalgia Resources
FM Medications (arricle summary)
Sunday Conversations - April 24, 2022
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- Last Updated: 29 April 2022 29 April 2022
"Working with Your Healthcare Provider”
Presented by Alba Azola, M.D.
The presentation is relevant to ME/CFS, Fibromyalgia, Long Covid and Chronic Lyme Disease.
Sunday, April 24, 2022, 4 p.m. ET
Alba Azola, M.D., is Assistant Professor in the Department of Physical Medicine and Rehabilitation, Johns Hopkins University School of Medicine, and Co-director of the PMR Post-Acute COVID-19 Team (JH PACT) Program.
Dr. Azola presented the physician's perspective: how patients can prepare for their visit, especially the initial visit, in a way that is most helpful for the physician to focus on the most important information so that the patient can get the most help from a limited time with the provider. She also discussed issues that providers experience in working with complex, chronic illness.
"Dave" and "Sue", parents of a teen with ME/CFS, shared the story of their challenges in finding and working with numerous providers to try to get help for their child.
Moderator: Karin Dove, MassME Patient Services Volunteer
This is a virtual presentation via Zoom.
Links to video recordings:
Playlist: https://www.youtube.com/playlist?list=PLz31KwoUbYrGjlOUKA5Yz5dTMBKMDdolR
Full program: https://youtu.be/c7sACMrqsY0
Part 1 - Physician Perspective: https://youtu.be/5m1YadySvwA
Part 2 - Family Perspective: https://youtu.be/IFWMVNchb4g
Part 3 - Q&A: https://youtu.be/ZG3y_cBoVro
Resources for Working with your Healthcare Provider