News
Press Release: Boston Millions Missing Event May 11th!
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- Last Updated: 13 May 2019 13 May 2019
Boston ME/CFS Protest to Feature Speeches, Display, and Performances
Large crowd expected on Boston Common for #MillionsMissing Demonstration
BOSTON, MA, 5/6/2019---On Saturday, May 11 from 1:00-3:00pm, Massachusetts residents living with ME/CFS, also known as Myalgic Encephalomyelitis (ME) or Chronic Fatigue Syndrome (CFS), will rally at the Boston Common Liberty Mall together with caretakers and allies to call for immediate and comprehensive action on the ME/CFS public health crisis. They will join thousands of others demonstrating physically in more than 80 cities worldwide and virtually on social media as part of the fifth global #MillionsMissing protest.
Read more: Press Release: Boston Millions Missing Event May 11th!
Resources for the MGH Institute (and anyone else)
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- Last Updated: 06 February 2019 06 February 2019
Slide Presentation, January 15, 2019
Required and recommended reading for the IHP Interprofessional rounds January 2019
Supplementary Readings: Annotated List (Massachusetts ME/CFS & FM Association)
Links to more information about ME/CFS (Massachusetts ME/CFS & FM Association)
Get CME/CE credit for watching Unrest
Video presentations
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- Last Updated: 23 February 2022 23 February 2022
Videos of 2022 Sunday Conversations series
Video of Grand Rounds at Heywood Hospital, Dr. Anthony Komaroff, October 27, 2021
Video from "Invisible Disabilities: Long COVID and Other Post-Infectious Illnesses", September, 2021
Video from "Post-Pandemic Zooming for Jewish Disability Inclusion (6-27-21)"
Video from The Puzzle Solver author event, February, 2021
Videos from our annual lecture series with ME/CFS leaders and researchers, 2010 to the present
Videos of MassMECFS & FM Unrest events
Videos of our organization’s members, with Llewellyn King
More Articles ...
Notice about names
The Massachusetts ME/CFS & FM Association would like to clarify the use of the various acronyms for Chronic Fatigue Syndrome (CFS), Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS) and Myalgic Encephalomyelitis (ME) on this site. When we generate our own articles on the illness, we will refer to it as ME/CFS, the term now generally used in the United States. When we are reporting on someone else’s report, we will use the term they use. The National Institutes of Health (NIH) and other federal agencies, including the CDC, are currently using ME/CFS.
Massachusetts ME/CFS & FM Association changed its name in July, 2018, to reflect this consensus.