Sunday Conversations - May 19, 2024

“Are You M.A.D.? 

An axis awry of
Mast cell activation disease,
Autonomic neuropathy and
Disorders of connective tissue"

Sunday, May 19, 2024, 4 p.m. Eastern Time


Dr. Anne Maitland

A growing body of evidence is linking heritable disorders of connective tissue, such as Ehlers Danlos Variants, with dysautonomia and mast cell dysfunction, which lead to chronic fatigue, brain fog, irritable bowel symptoms and pain syndromes. Dr. Maitland will present a brief review of the diagnosis and relationships of this clinical triad, MCAD, Autonomic dysfunction, and Disorders of connective tissue or hEDS. A better understanding of these relationships should lead to multi-disciplinary clinical therapies to help right this trio of modern day epidemics.

Read more: Sunday Conversations - May 19, 2024


Sunday Conversations - April 21, 2024

“Got Mold? How Our Homes Impact Our Health”

Sunday, April 21, 2024, 4 p.m. Eastern Time


Michael Rubino

Michael Rubino is the co-founder and chair of Change the Air Foundation, a non-profit giving every person the knowledge, resources, and support to achieve better health by breathing safe indoor air. In this edition of Sunday Conversations with MassME, Michael discussed air quality, mold, bacteria, symptoms of living with water damage, tests for mold and air quality, and the steps we can take to make our homes safer.

Read more: Sunday Conversations - April 21, 2024


Sunday Conversations - March 17, 2024

“Dysautonomias 101: More Than Just POTS”

Sunday, March 17, 2024, 4 p.m. Eastern Time

 
Peter Cariani, Ph.D.
 
Hayla Sluss, Ph.D

“Dysautonomias” refers to the generic term encompassing all disorders of the autonomic nervous system. In this edition of Sunday Conversations, Peter Cariani, Ph.D., gave a brief overview of the autonomic nervous system and what can go wrong. He also described the role of dysautonomias in ME/CFS, FM, and other chronic conditions, what causes these conditions to be self-sustaining, what medical specialties treat dysautonomias, and added his own thoughts about diagnosis and treatment. Hayla Sluss, Ph.D., presented symptoms and accommodations.

Read more: Sunday Conversations - March 17, 2024


Sunday Conversations - February 18, 2024

 

 

Sunday Conversation for February:

Small Group Discussions

"Living with co-morbidities or other serious illnesses"

Sunday, February 18, 2024, 4 p.m. Eastern Time

Please join us for small group discussions on living with ME/CFS and common co-morbidities or other serious illnesses. We will divide into groups based on age/stage of life: Young Adult, Adult, Seniors/Aging, or Ally/Caregiver, wherever you think you fit! 

This topic was suggested by several respondents in our recent survey!

**Registration closes one hour before the event begins, so register now!**

Read more: Sunday Conversations - February 18, 2024