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“When we started the first support group in 1983, I had no idea what this organization would grow into. These illnesses did not even have names, let alone any treatment options then."

— Bonnie Gorman, Founder

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About Massachusetts CFIDS/ME & FM Association
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The Massachusetts CFIDS/ME & FM Association is one of the oldest voluntary patient associations in the United States. Founded in 1985, our organization exists to meet the needs of CFIDS/ME (Chronic Fatigue and Immune Dysfunction Syndrome/Myalgic Encephalopathy) and FM (Fibromyalgia) patients, their families and loved ones. We also work to educate and involve interested healthcare providers. We seek to educate the general public so that CFIDS/ME and FM will be recognized and understood as real, serious and severely disabling illnesses.

Our Mission

The Massachusetts CFIDS/ME & FM Association is dedicated to working and advocating for effective medical research and treatments that will both alleviate patient suffering and lead to a cure.

We provide information and supportive services to help patients, their families, and their loved ones cope more effectively with these illnesses.

We work to educate both healthcare providers and the general public, so that CFIDS/ME and FM will be recognized and understood as real, serious, and severely disabling physical illnesses.

Read about the History of the Association.

Our Ongoing Programs

Read Updates from our President:

The Massachusetts CFIDS/ME & FM Association today is made up entirely of patient volunteers and their families and friends.

  • We have a new and improved website with a much wider variety of quality content needed by patients, their families, health care providers and the general public. The new website is more extensive, better organized and more easily navigable.
  • We provide information on a wide variety of topics relating to the illnesses, through our website, Information Telephone Line, and mailings.
  • We maintain a subscription email list for distributing current CFIDS/ME & FM related news including information about events, conferences, lectures, recent articles, new research findings and more.
  • We provide a range of support services for patients, including physician referral, disability counseling, support group referral, and support through our Information Telephone Line and e-mail. We are in the best position to assist individuals in Massachusetts; however, we can occasionally help those outside the region or we will refer them to their local or state patient groups.
  • We are developing new ways to educate and involve Massachusetts healthcare providers.
  • We are working cooperatively with other associations in the Northeast to develop joint programs for patients and their families and healthcare provider education.
  • We wish to build our Association into a strong force for advocacy in Massachusetts, and cooperate with other regional and national organizations in advocacy efforts both on the regional and national levels.

We will soon be promoting membership in our Association as a way of affirming the commitment to our goals and financing ongoing activities.

We need the assistance of volunteers, either patients or healthy individuals, for whatever time they can offer, to assist with the work of the Association.

How you can get involved

Make a donation or volunteer

If you believe in and support our work, please make a donation of any amount that you can afford.  We also welcome volunteers.

How to reach us

Mailing address

Massachusetts CFIDS/ME & FM Association
P.O. Box 690305
Quincy, MA 02269-0305 USA

Online

Contact us

Information line

(617) 471-5559

Patient services

If you are a patient requesting information or support services, please read more about our Services.

 
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