Massachusetts CFIDS/ME & FM Association - Advocacy

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Advocacy

So stick to the fight when you’re hardest hit
It’s when things seem worst that you must not quit.

— Don’t Quit
Spring 1990 Messenger
M.E. Association of Canada

photo of 6 hands joined to make a circle

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FDA Webinar on Advocacy

2

Update on ME/CFS Patient Alliance meeting of Oct. 18 with Dr. Nancy Lee

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Summary of the Patient-Focused Drug Development Initiative

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FDA Patient-Focused Drug Development Intiative - Sample Letter (by November 1, 2012)

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Patients are urged to recommend CFS/FM for the FDA’s Patient-Focused Drug Development Initiative

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CDC Response to Massachusetts CFIDS/ME & FM Association

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Dr. Gurwitt's Statement for the October 2012 CFSAC Meeding

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Position Paper to CDC on CFS Toolkit and IACFS/ME Primer

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DHHS Response to Joint Request for Action prompts second letter

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Joint Request from the ME/CFS Community for Action - Positive Response from the FDA

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