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So stick to the fight when you’re hardest hit
It’s when things seem worst that you must not quit.

— Don’t Quit
Spring 1990 Messenger
M.E. Association of Canada
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Advocacy Alert, Priority 1

Please click on the following link to send your message to the new U.S. Secretary of Health and Human Services, Kathleen Sebellius, supporting the critically important recommendations of the U.S. CFS Advisory Committee (CFSAC) which call for:

  1. Replacing those in charge of the CFS program at the Centers for Disease Control and Prevention (CDC) who have done little to help CFIDS/ME patients with new and progressive leadership
  2. Establish a new research program that will work to discover the causes and biomarkers for CFIDS
  3. Establish clinical centers for treatment.

http://capwiz.com/cfids/issues/alert/?alertid=13463086&type=CU

This is a very important moment in the history of CFIDS/ME. The CFIDS Association of America (CAA), the International Association for CFS/ME (IACFS/ME), and the federal U.S. CFS Advisory Committee have finally together recognized that the CDC is not serving the interests of current and future patients.

The CAA is the largest patient group in the U.S. The IACFS/ME Association is made up of 500 international CFIDS/ME researchers and clinicians.

The CFSAC is a federal advisory committee established to advise the Dept. of Health and Human Services on CFIDS/ME issues.

These groups are requesting that the chief health officer of the federal government remove those at the CDC, including Dr. William Reeves, who have for so many years diverted and blocked progress in understanding and treating CFIDS/ME.

By adding your voice through e-mail to the voices of thousands of other CFIDS/ME patients, we may be able to get the Secretary to act. If each one of us acts, this is a real opportunity to make a change.

Click the link and add your voice:

http://capwiz.com/cfids/issues/alert/?alertid=13463086&type=CU


 
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