The Massachusetts CFIDS/ME & FM Association, a 501(c)3 founded in 1985, exists to meet the needs of patients with CFIDS (Chronic Fatigue and Immune Dysfunction Syndrome, also known as Chronic Fatigue Syndrome), ME (Myalgic Encephalomyelitis) or FM (Fibromyalgia), their families and loved ones. The Massachusetts CFIDS/ME & FM Association works to educate health-care providers and the general public regarding these severely-disabling physical illnesses. We also support patients and their families and advocate for more effective treatment and research.
- Last Updated: 20 November 2015 20 November 2015
In today's world, so many people do not have medical insurance that when things get bad they go to the Emergency Room (ER) of a hospital.
As a Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) patient, going to an ER should be the last thing you do rather than the first. For a serious accident, broken bones or body parts that aren't where they should be, definitely head to an ER. Know that you will be there for hours and if you need to eat (i.e. diabetics) bring something with you, if possible.
There are some things you should know first: ER's triage, treat and transfer.
They do not do follow-ups and do not deal with chronic long-term issues. They are trained in solving a problem, not in preventing one. Some patients who repeatedly end up there become "frequent fliers" at the ER.
The doctors and nurses have special training in trauma which means they stabilize and then send you out; either to be admitted, or released to home or another facility. The physicians hardly ever see the patients after the ER so when an ME/CFS patient walks through the door, in the majority of cases the medical staff doesn't know what to do with or for ME/CFS.
It is imperative that you, the patient, have a clear idea of what you need from this visit and stick with it. If your foot is broken, get it set. Having Orthostatic Intolerance has nothing to do with the broken foot.
If you are running a high fever and haven't slept in 4 days, they should know you have a faulty immune system. Do not go in expecting an answer to ME/CFS. Instead, try to find a primary care physician with whom you can work. This is easier said than done but we don't want patients unrealistically setting expectations that can not be met.
There is a time and place for an ER visit and it is for emergencies.
According to the American College of Emergency Physicians Foundation (ACEP) at www. Emergencycareforyou.org the following are the reasons to go to an Emergency Room:
Good Reasons to Go to an Emergency Room:
Bad Reasons to Go to an Emergency Room:
Loss of consciousness.
Signs of heart attack that last two minutes or more. These include: pressure, fullness, squeezing or pain in the center of the chest; tightness, burning, or aching under the breastbone; chest pain with lightheadedness.
Signs of a stroke, including: sudden weakness or numbness of the face, arm or leg on one side of the body; sudden dimness or loss of vision, particularly in one eye; loss of speech, or trouble talking or understanding speech; sudden, severe headaches with no known cause; unexplained dizziness, unsteadiness or sudden falls, especially when accompanied by any other stroke symptoms.
Severe shortness of breath.
Bleeding that does not stop after 10 minutes of direct pressure.
Sudden, severe pain.
Poisoning (Note: If possible, call your local poison control center first and ask for immediate home treatment advice-certain poisons should be vomited as soon as possible while others should be diluted with water as soon as possible. Such preliminary home treatment could save your life.)
A severe or worsening reaction to an insect bite or sting, or to a medication, especially if breathing is difficult.
A major injury, such as a head trauma.
Unexplained stupor, drowsiness or disorientation.
Coughing up or vomiting blood.
Severe or persistent vomiting.
Suicidal or homicidal feelings.
Minor cuts where bleeding is controlled.
A minor dog or animal bite where bleeding is controlled (but see your doctor-a rabies shot may be necessary).
A broken bone (call your doctor to see if he/she can treat you the same day, if not- or if bone is showing, limb is deformed-go to the ER).
A sunburn or minor burn from cooking.
An insect sting or delayed swelling from a sting (if there is breathing difficulty, go to the ER).
A skin rash.
Fever (if there is a convulsion, go to the ER).
Colds and cough, sore throat, flu.
Notice about names
The Massachusetts CFIDS/ME & FM Association would like to clarify the use of the various acronyms for Chronic Fatigue Syndrome (CFS), Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS) and Myalgic Encephalomyelitis (ME) on this site. When we generate our own articles on the illness, we will refer to it as ME/CFS, the term now generally used in the United States. When we are reporting on someone else’s report, we will use the term they use. The National Institutes of Health (NIH) are currently using ME/CFS. The Centers for Disease Control and Prevention (CDC) are calling the illness CFS.
Until there is consensus on a name for the illness, the Massachusetts CFIDS/ME & FM Association name will not change.