Rainbow at shoreline

The Massachusetts CFIDS/ME & FM Association, a 501(c)3 founded in 1985, exists to meet the needs of patients with CFIDS (Chronic Fatigue and Immune Dysfunction Syndrome, also known as Chronic Fatigue Syndrome), ME (Myalgic Encephalomyelitis) or FM (Fibromyalgia), their families and loved ones. The Massachusetts CFIDS/ME & FM Association works to educate health-care providers and the general public regarding these severely-disabling physical illnesses. We also support patients and their families and advocate for more effective treatment and research.

There has been much controversy over whether the newly found XMRV virus infects humans and whether it is a causal agent of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). The National Institutes of Health (NIH) has now undertaken a multi-center study to investigate why results in other studies differed so much, whether those studies actually duplicated the methods of the initial study, and whether positive study results were the result of contaminated reagents. It may take a year or more to learn the results.

Therefore, rather than posting every new article on the XMRV controversy, we are offering links that give a very comprehensive timeline and overall picture.

At Phoenix Rising, this link explains some of the history of XMRV.

 

Notice about names

The Massachusetts CFIDS/ME & FM Association would like to clarify the use of the various acronyms for Chronic Fatigue Syndrome (CFS), Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS) and  Myalgic Encephalomyelitis (ME) on this site. When we generate our own articles on the illness, we will refer to it as ME/CFS, the term now generally used in the United States. When we are reporting on someone else’s report, we will use the term they use. The National Institutes of Health (NIH) are currently using ME/CFS. The Centers for Disease Control and Prevention (CDC) are calling the illness CFS.

Until there is consensus on a name for the illness, the Massachusetts CFIDS/ME & FM Association name will not change.