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Links to recent U.S. government activity on ME/CFS
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- Last Updated: 23 June 2017 23 June 2017
NIH teleconference with ME/CFS advocates, March 8, 2016, audio file and transcript
Dr. Anthony Komaroff "Beyond the Data" video interview, follow up to CDC's Grand Rounds presentation
CDC Grand Rounds Presentation, "Chronic Fatigue Syndrome: Advancing Research and Clinical Education," Tuesday, February 16, 2016
Institute of Medicine report:
Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Redefining an Illness, February 10, 2015
National Institutes Of Health, Pathways to Prevention (P2P) Workshop report:
Advancing the Research on Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome, December 9–10, 2014
Agency for Healthcare Research and Quality, Research Review (“Evidence review”):
Diagnosis and Treatment of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, December 9, 2014
U.S. Food and Drug Administration, Patient-Focused Drug Development Initiative report:
Chronic Fatigue Syndrome and Myalgic Encephalomyelitis, September, 2013.
National Institutes Of Health, State of Knowledge Workshop report:
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Research, April 7-8, 2011
Does Advocacy Work, P2P edition
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- Last Updated: 06 January 2016 06 January 2016
With all the discussion around the Institute of Medicine ME/CFS report, have you thought about the Pathways To Prevention report lately? The final report, to give guidance to the National Institutes of Health on future funding ME/CFS research (including a recommendation for funding Centers of Excellence for ME/CFS) and to review treatment recommendations, has been delayed. Find out why in "Does Advocacy Work, P2P Edition - Good News and Bad News."
UPDATE: The Office of Disease Prevention promises to change the way public comments are handled in the future. "For future P2P workshops, public comments will be posted online as they are submitted to enhance the transparency of this process and to ensure that all comments are received by the panel in a timely manner."
Read our letter to the Office of Disease Prevention (ODP), and ODP's response.
Newton-Wellesley Hospital Directions and Parking
- Details
- Last Updated: 06 January 2016 06 January 2016
Newton-Wellesley Hospital
2014 Washington Street
Newton, MA
617-243-6222 Concierge Desk
Newton-Wellesley Hospital Campus Map
http://www.nwh.org/gedownload!/Campus2MapApril2014.pdf?item_id=42482019
Newton-Wellesley Hospital Campus First Floor Map
http://www.nwh.org/gedownload!/Campus2MapFirstFloorApril2014.pdf?item_id=42482017
Parking Information
There is NO VALET Parking on the weekends.
There are two (2) options for parking. The Shipley Auditorium (in the Bowles Conference Center) is on the West Side of the building.
WEST ENTRANCE Outside parking
- There is a set of stairs from the outside parking lot to the West Entrance along the right side of the building as you face it
- If stairs are a problem, one can walk out of the parking lot and up the West Entrance driveway to the West Entrance
- Once inside the Concierge Desk will be on your right
- Pass the Concierge Desk and go RIGHT to the end of the hall
- At the end of the hall go RIGHT
- The South Elevators will be on your Left
- Go to the Second Floor
- Go LEFT off the elevator and continue straight into the Bowles Conference Center
- SHIPLEY Auditorium will be on the LEFT
- There is a food court and bathrooms before you get to the Shipley Auditorium
EAST ENTRANCE Patient/Visitors Garage (6 floors)
- Enter the Parking Garage
- Whichever floor you end up on take the elevator to the third (3rd) floor of the garage
- The 3rd floor of the garage will put you on the 1st floor of the hospital in the WHITE Building
- At the bathrooms and the ATM machine go LEFT
- Follow signs to the WEST Entrance and Concierge Desk
- Turn LEFT when you see the Concierge Desk, go to the end of the hall
- At the end of the hall go RIGHT
- The South Elevators will be on your Left
- Go to the Second Floor
- Go LEFT off the elevator and continue straight into the Bowles Conference Center
- SHIPLEY Auditorium will be on the LEFT
- There is a food court and bathrooms before you get to the Shipley Auditorium
PARKING FEES
Credit/Debit or cash payment on the way out of the parking lot or garage
- 1 hr $3
- 1-1.5 hr $4
- 1.5-2 hr $5
- 2-2.5 hr $6
- 2.5-3 hr $7
- 3-5 hr $8
- All day $10
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Notice about names
The Massachusetts ME/CFS & FM Association would like to clarify the use of the various acronyms for Chronic Fatigue Syndrome (CFS), Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS) and Myalgic Encephalomyelitis (ME) on this site. When we generate our own articles on the illness, we will refer to it as ME/CFS, the term now generally used in the United States. When we are reporting on someone else’s report, we will use the term they use. The National Institutes of Health (NIH) and other federal agencies, including the CDC, are currently using ME/CFS.
Massachusetts ME/CFS & FM Association changed its name in July, 2018, to reflect this consensus.