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President's Letter - Winter 2012

MassCFIDS 2011 Fall Meeting Highlights Part 2 - Drs. Kenneth Friedman and Alan Gurwitt brought encouraging news to ME/CFS patients.

MassCFIDS 2011 Fall Meeting Highlights Part 1 - Summary of Dr. Anthony Komaroff's review of the 2011 IACFS/ME meeting highlights.

For Health Care Providers – Two items have been added to the For Health Care Providers article index:

Chronic Fatigue Syndrome Advisory Committee - November 2011 meeting
Videocast and copies of all presentations from the November meeting are now available on the CFSAC website. Check out the Committee's review of the CDC website on the morning of Day 2. This is an important site for those who are following public advocacy for ME/CFS and the activities of the CDC and NIH.

Emergency Preparedness Plans for CFIDS, CFS, ME and FM Patients
Practical tips for preparing for short-term weather-related emergencies, as well as advice for what documents you will need to have at the ready in case of dire emergency, such as a house fire.

 
Summary of the Massachusetts CFIDS/ME & FM Association Fall 2011 Educational Forum PDF Print E-mail

The Massachusetts CFIDS/ME & FM Association held its Fall 2011 educational forum, co-sponsored by the Massachusetts Department of Health, on November 5, 2011 at the UMass-Hinton State Laboratory Institute Auditorium in Jamaica Plain, MA.

The meeting was a review of research and other content from the September 2011 International Association for Chronic Fatigue Syndrome /Myalgic Encephalomyelitis (IACFS/ME) Conference held in Ottawa, Canada. The written summary is in two parts.

Part 1: Dr. Anthony Komaroff’s review of the conference highlights (presented at the meeting on audio, with accompanying slides)

Part 2: Dr. Kenneth Friedman and Dr. Alan Gurwitt spoke about other studies, news and developments.

 
Are You Confused by all of the Acronyms? PDF Print E-mail

This helpful article will help you learn what all of the letters mean. Read full article.

 
2011 IACFS/ME Conference Summaries PDF Print E-mail

This conference, sponsored by the International Association for CFS/ME, brought together over 200 clinicians and researchers from 20 countries. The conference was held September 22-25 in Ottawa, Ontario, Canada.

Dr. Charles Lapp highlights what he found to be most important and interesting of the presentations. Read Dr. Lapp's summary.

Dr. Rosamund Vallings presents a brief summary of every paper presented in the plenary sessions, with a topic index. Read Dr. Vallings' summary.

Read the abstracts of all papers presented at the conference.

 
25 Year Follow-up in Chronic Fatigue Syndrome PDF Print E-mail
On April 16, 2011, Dr. David S. Bell was the keynote speaker at the Massachusetts CFIDS/ME & FM Association’s (MassCFIDS) continuing-education lecture series. The event was co-sponsored by the Massachusetts Department of Public Health at the Hinton State Laboratory Institute Auditorium. Dr. Bell, a retired pediatrician from upstate New York with intense curiosity, set out to find answers as to what made his young patients so ill during the cluster outbreak in the late 1980’s. Along the way, he became one of the world’s leading researchers on CFIDS/ME and one of only a handful of physicians who have been able to closely follow his patient population for decades. Dr. Bell has authored many research articles as well as leading books on Chronic Fatigue Syndrome.  View the full article.
 
CFS/ME and Mitrochondrial Dysfunction PDF Print E-mail

Mitochondria are the "organelles" within every cell of the human body (except for red blood cells) that manufacture the energy needed by the cells in order to function. When this process of energy production fails or is impaired, it can interfere with many bodily functions and cause many problems. The goal of this article is to explain the role of mitochondrial function in CFS/ME because this tends to be overlooked or not well understood. This is especially revelant for those patients who experience "post-exertional malaise."  This article has been added to our Health Care Providers page.

This comprehensive review was compiled and written by Lucy Dechéne, PhD, who is an elected member of the New York Academy of Sciences, and Sigma Xi: The Scientific Research Honor Society, as well as other scientific societies. She is also a member of the board of the Massachusetts CFIDS/ME & FM Association.  View the article.

 
Updated! Warning on Blood Donation PDF Print E-mail
Patients with CFIDS/ME are advised not to give blood.

Read recommendation...

 

View videos of recent lectures

View the video of Dr. David Bell's lecture, "25 Year Follow-up in Chronic Fatigue Syndrome: Rising Incapacity."
View the video of Dr. Anthony Komaroff's lecture, "The Latest Research on CFS."

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