The Massachusetts CFIDS/ME & FM Association, a 501(c)3 founded in 1985, exists to meet the needs of patients with CFIDS (Chronic Fatigue and Immune Dysfunction Syndrome, also known as Chronic Fatigue Syndrome), ME (Myalgic Encephalomyelitis) or FM (Fibromyalgia), their families and loved ones. The Massachusetts CFIDS/ME & FM Association works to educate health-care providers and the general public regarding these severely-disabling physical illnesses. We also support patients and their families and advocate for more effective treatment and research.
- Last Updated: 07 December 2015 07 December 2015
We don’t always have to be strong. Sometimes, our strength is expressed in being vulnerable. Sometimes, we need to “fall apart” in order to regroup and stay on track.
We all have days when we cannot push any harder, cannot hold back self-doubt, cannot stop focusing on fear, cannot be “strong." There are days when we cannot focus on being responsible. Occasionally, we don’t want to get out of our pajamas. Sometimes, we cry in front of people. We expose our tiredness, irritability, or anger.
These days are ok. They are, simply, ok.
Part of our taking care of ourselves means we give ourselves PERMISSSION to fall apart when we need to. We do not have to be perpetual towers of strength. We are strong. We have proven that. Our strength will continue if we allow ourselves the courage to feel scared, weak, and vulnerable when we need to experience these feelings.
Today, help me to know that it is okay to allow myself to be human. Help me not to feel guilty or punish myself when I need to fall apart.
(Source: Melody Beattie, The Language of Letting Go)
Notice about names
The Massachusetts CFIDS/ME & FM Association would like to clarify the use of the various acronyms for Chronic Fatigue Syndrome (CFS), Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS) and Myalgic Encephalomyelitis (ME) on this site. When we generate our own articles on the illness, we will refer to it as ME/CFS, the term now generally used in the United States. When we are reporting on someone else’s report, we will use the term they use. The National Institutes of Health (NIH) are currently using ME/CFS. The Centers for Disease Control and Prevention (CDC) are calling the illness CFS.
Until there is consensus on a name for the illness, the Massachusetts CFIDS/ME & FM Association name will not change.