The Massachusetts CFIDS/ME & FM Association, a 501(c)3 founded in 1985, exists to meet the needs of patients with CFIDS (Chronic Fatigue and Immune Dysfunction Syndrome, also known as Chronic Fatigue Syndrome), ME (Myalgic Encephalomyelitis) or FM (Fibromyalgia), their families and loved ones. The Massachusetts CFIDS/ME & FM Association works to educate health-care providers and the general public regarding these severely-disabling physical illnesses. We also support patients and their families and advocate for more effective treatment and research.
- Last Updated: 02 December 2015 02 December 2015
by Ken Casanova
June 27, 1999
On June 27, 1999, Dr. Nancy Klimas, an internationally respected Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) researcher and clinician, and a member of the federal CFS Coordinating Committee, presented a thorough review of the latest scientific information on CFS research and treatment. At the end of her lecture the Massachusetts CFIDS/ME & FM Association presented Dr. Klimas with a substantial donation for her work. This donation would not have been possible without the support of our members and contributors.
Dr. Klimas emphasized that ME/CFS patients have good reason to be hopeful since ME/CFS research has advanced in these last few years as a result of more research funding. Dr. Klimas stressed that the political and advocacy work of patient organizations are a key to obtaining future research funds. Political pressure pushes the federal government to provide the ME/CFS research funds critical to future progress. (Since this lecture, Dr. Klimas has received an NIH CFIDS Research Center grant.)
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Notice about names
The Massachusetts CFIDS/ME & FM Association would like to clarify the use of the various acronyms for Chronic Fatigue Syndrome (CFS), Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS) and Myalgic Encephalomyelitis (ME) on this site. When we generate our own articles on the illness, we will refer to it as ME/CFS, the term now generally used in the United States. When we are reporting on someone else’s report, we will use the term they use. The National Institutes of Health (NIH) are currently using ME/CFS. The Centers for Disease Control and Prevention (CDC) are calling the illness CFS.
Until there is consensus on a name for the illness, the Massachusetts CFIDS/ME & FM Association name will not change.