The Massachusetts CFIDS/ME & FM Association, a 501(c)3 founded in 1985, exists to meet the needs of patients with CFIDS (Chronic Fatigue and Immune Dysfunction Syndrome, also known as Chronic Fatigue Syndrome), ME (Myalgic Encephalomyelitis) or FM (Fibromyalgia), their families and loved ones. The Massachusetts CFIDS/ME & FM Association works to educate health-care providers and the general public regarding these severely-disabling physical illnesses. We also support patients and their families and advocate for more effective treatment and research.
- Last Updated: 13 January 2016 13 January 2016
Videos of the Patient Day presentations from the IACFS/ME Conference (September 2011) have been posted on the National ME/FM Action Network site, the Canadian group who hosted the conference. There are 13 presentations, each approximately 30 minutes.
Topics include diagnosis, treatment and management, research, and disability, and are presented by some of the foremost practitioners in these fields.
- Questions and Answers - Panel Discussion
- Differentiating ME/CFS and Fibromyalgia from Psychiatric Disorders - Eleanor Stein, MD
- Tools to Stop Crashing, Start Pacing and Planning Your Health - Allison Bested, MD
- Effective Management of Activity Intolerance - Staci R. Stevens, MA
- Translating Scientific Research into Patient Care - Annette Whittemore
- Latest Research on the Pathophysiology of ME/CFS - Nancy G. Klimas, MD
- Legal Aspects of Disability - Hugh R. Scher
- Fibromyalgia: Current Status - Roland Staud, MD
- What Helps People Cope with ME/CFS - Fred Friedberg, PhD
- Non-Pharmacological Interventions - Leonard A. Jason, PhD
- New Developments in Possible Causes of ME/CFS - Anthony L. Komaroff, MD
- How I Help CFS/ME Patients in Canada - Byron Hyde, MD
- Advocacy (ME/FM Action Network) - Lydia Neilson
Thanks to the National ME/FM Action Network for making these presentations available to everyone.
Notice about names
The Massachusetts CFIDS/ME & FM Association would like to clarify the use of the various acronyms for Chronic Fatigue Syndrome (CFS), Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS) and Myalgic Encephalomyelitis (ME) on this site. When we generate our own articles on the illness, we will refer to it as ME/CFS, the term now generally used in the United States. When we are reporting on someone else’s report, we will use the term they use. The National Institutes of Health (NIH) are currently using ME/CFS. The Centers for Disease Control and Prevention (CDC) are calling the illness CFS.
Until there is consensus on a name for the illness, the Massachusetts CFIDS/ME & FM Association name will not change.