Rainbow at shoreline

The Massachusetts CFIDS/ME & FM Association, a 501(c)3 founded in 1985, exists to meet the needs of patients with CFIDS (Chronic Fatigue and Immune Dysfunction Syndrome, also known as Chronic Fatigue Syndrome), ME (Myalgic Encephalomyelitis) or FM (Fibromyalgia), their families and loved ones. The Massachusetts CFIDS/ME & FM Association works to educate health-care providers and the general public regarding these severely-disabling physical illnesses. We also support patients and their families and advocate for more effective treatment and research.

CFSAC Spring 2013 Meetings

12 videos, 12 hours by U.S. Dept. of Health and Human Services
The Chronic Fatigue Syndrome Advisory Committee (CFSAC) discusses the current issues of chronic fatigue syndrome.

Day 1

Welcome & Call to Order - Day 1 (CFSAC Spring 2013)
Duration: 1:23:00
Chronic Fatigue Syndrome Advisory Committee (CFSAC) Meeting, Day 1, May 22, 2013, 9:00 - 10:30 AM. Call to Order CFSAC Chair, Gailen Marshall, Jr., M.D., Ph.D. Welcome Statement from the Principal Deputy Assistant Secretary for Health…

Public Comment on Day 1 (CFSAC Spring 2013)
Duration: 59:38
Chronic Fatigue Syndrome Advisory Committee (CFSAC) Meeting, Day 1, May 22, 2013, 11:45 AM - 1:00 PM. Public Comment.…[Note: time is given incorrectly. It should be 10:45 - 11:45 a.m.]
 
Approve Prioritized Recommendations List - Day 1 (CFSAC Spring 2013)
Duration: 26:05
Chronic Fatigue Syndrome Advisory Committee (CFSAC) Meeting Day 1, May 22, 2013, 1:00 - 1:30 PM. Approve Prioritized Recommendations List and Accept Proposed List of ME/CFS Orgs Websites, Committee Members. …
 
Determination of Medicare Coverage of Test and Treatments - Day 1 (CFSAC Spring 2013)
Duration: 1:03:30
Chronic Fatigue Syndrome Advisory Committee (CFSAC) Meeting Day 1, May 22, 2013, 1:30 - 2:30 PM. CMS Determination of Medicare Coverage of Test and Treatments, Dr. Louis B. Jacques, M.D…
 
Public Question & Answer on Day 1 (CFSAC Spring 2013)
Duration: 24:52
Chronic Fatigue Syndrome Advisory Committee (CFSAC) Meeting Day 1, May 22, 2013,
2:45 - 3:15 PM. Public Q&A.…
   
Committee Discussion and Plans for Day 2 (CFSAC Spring 2013)
Duration: 1:48:34
Chronic Fatigue Syndrome Advisory Committee (CFSAC) Meeting Day 1, May 22, 2013,
3:15 -- 5 PM. Committee Discussion and Plans for Day 2, Committee Members…

Day 2

Opening Remarks on Day 2 (CFSAC Spring 2013)
Duration: 1:12:37
Chronic Fatigue Syndrome Advisory Committee (CFSAC) Meeting Day 2, May 23, 2013,
9:00 - 10:15 AM. Opening Remarks CFSAC Chair Gailen Marshall, Jr., M.D., Ph.D. Agency Updates: AHRQ, NIH, FDA, Ex …
 
Health Insurance Marketplace - Day 2 (CFSAC Spring 2013)
Duration: 46:01
Chronic Fatigue Syndrome Advisory Committee (CFSAC) Meeting Day 2, May 23 2013,
10:15 - 11:00 AM. Health Insurance Marketplace, Anand Parekh, M.D., M.P.H.…

Public Comment on Day 2 (CFSAC Spring 2013)
Duration: 1:06:06
Chronic Fatigue Syndrome Advisory Committee (CFSAC) Meeting Day 2, May 23, 2013,
11:15 AM - 12:15 PM. Public Comment …

Public Question and Answer on Day 2 (CFSAC Spring 2013)
Duration: 1:09:57  
Chronic Fatigue Syndrome Advisory Committee (CFSAC) Meeting Day 2, May 23, 2013,
1:30 - 3:00 PM. How To Get More Clinicians Involved in ME/CFS? Susan M. Levine, M.D., and Lisa W. Corbin, M.D., FACP. P…
 
Committee Discussion on Day 2 (CFSAC Spring 2013)
Duration: 32:45  
Chronic Fatigue Syndrome Advisory Committee (CFSAC) Meeting Day 2, May 23, 2013,
3:00 - 3:30 PM. Committee Discussion…
 
Committee Discussion (Part #2) on Day 2 (CFSAC Spring 2013)
Duration: 1:23:15
Chronic Fatigue Syndrome Advisory Committee (CFSAC) Meeting Day 2, May 23, 2013,
3:30 - 5:00 PM Committee Discussion…

Notice about names

The Massachusetts CFIDS/ME & FM Association would like to clarify the use of the various acronyms for Chronic Fatigue Syndrome (CFS), Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS) and  Myalgic Encephalomyelitis (ME) on this site. When we generate our own articles on the illness, we will refer to it as ME/CFS, the term now generally used in the United States. When we are reporting on someone else’s report, we will use the term they use. The National Institutes of Health (NIH) are currently using ME/CFS. The Centers for Disease Control and Prevention (CDC) are calling the illness CFS.

Until there is consensus on a name for the illness, the Massachusetts CFIDS/ME & FM Association name will not change.