Rainbow at shoreline

The Massachusetts CFIDS/ME & FM Association, a 501(c)3 founded in 1985, exists to meet the needs of patients with CFIDS (Chronic Fatigue and Immune Dysfunction Syndrome, also known as Chronic Fatigue Syndrome), ME (Myalgic Encephalomyelitis) or FM (Fibromyalgia), their families and loved ones. The Massachusetts CFIDS/ME & FM Association works to educate health-care providers and the general public regarding these severely-disabling physical illnesses. We also support patients and their families and advocate for more effective treatment and research.

Here are the links to the videos from the October 2012 Chronic Fatigue Syndrome Advisory Committee (CFSAC), held on Oct. 3-4.

These were posted on October 10, making them available MUCH sooner than the videocast of the spring meeting.  No notice was given by the CFSAC officials, however, not even an email to the CFSAC mail-list.  Thanks to advocates for finding these and listing the links!

Welcome & Opening Remarks (CFSAC Fall 2012)


Biomarkers - An Overview & Future Look (CFSAC Fall 2012)

Public Comment on Day One - AM (CFSAC Fall 2012)

Agency Updates from HRSA, NIH, and FDA (CFSAC Fall 2012)

FDA & Drug Development (CFSAC Fall 2012)

Public Comment on Day One - PM (CFSAC Fall 2012)

Committee Discussion & Plans for Day Two (CFSAC Fall 2012)

Opening Remarks & Agency Updates (CFSAC Fall 2012)

Social Security Administration (CFSAC Fall 2012)

Public Comment on Day Two (CFSAC Fall 2012)

ME/CFS Organizations (CFSAC Fall 2012)

A Path Forward (CFSAC Fall 2012)

Finalize Recommendations (CFSAC Fall 2012)

Search results for "CFSAC":




Notice about names

The Massachusetts CFIDS/ME & FM Association would like to clarify the use of the various acronyms for Chronic Fatigue Syndrome (CFS), Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS) and  Myalgic Encephalomyelitis (ME) on this site. When we generate our own articles on the illness, we will refer to it as ME/CFS, the term now generally used in the United States. When we are reporting on someone else’s report, we will use the term they use. The National Institutes of Health (NIH) are currently using ME/CFS. The Centers for Disease Control and Prevention (CDC) are calling the illness CFS.

Until there is consensus on a name for the illness, the Massachusetts CFIDS/ME & FM Association name will not change.