Rainbow at shoreline

The Massachusetts CFIDS/ME & FM Association, a 501(c)3 founded in 1985, exists to meet the needs of patients with CFIDS (Chronic Fatigue and Immune Dysfunction Syndrome, also known as Chronic Fatigue Syndrome), ME (Myalgic Encephalomyelitis) or FM (Fibromyalgia), their families and loved ones. The Massachusetts CFIDS/ME & FM Association works to educate health-care providers and the general public regarding these severely-disabling physical illnesses. We also support patients and their families and advocate for more effective treatment and research.

The Chronic Fatigue Syndrome Advisory Committee (CFSAC), which is an official advisory committee within the Department of Health and Human Services (DHHS), held its spring two day conference on May 10 -11, 2011. The committee has been meeting twice a year to review multiple issues related to ME/CFS (i.e., research updates, educational issues, healthcare, diagnosis, treatment, progress and setbacks) and make recommendations accordingly. Massachusetts CFIDS/ME & FM Association has prepared a summary of the highlights of the meeting.  The videocast is also available for viewing.

Due to the amount of material covered over the course of this two-day meeting, a separate report was prepared for each day.

Read the summary of highlights from Day 1.

Read the summary of highlights from Day 2.

Read the summary of committee discussion that concluded the CFSAC meeting concerning Medicare.

Notice about names

The Massachusetts CFIDS/ME & FM Association would like to clarify the use of the various acronyms for Chronic Fatigue Syndrome (CFS), Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS) and  Myalgic Encephalomyelitis (ME) on this site. When we generate our own articles on the illness, we will refer to it as ME/CFS, the term now generally used in the United States. When we are reporting on someone else’s report, we will use the term they use. The National Institutes of Health (NIH) are currently using ME/CFS. The Centers for Disease Control and Prevention (CDC) are calling the illness CFS.

Until there is consensus on a name for the illness, the Massachusetts CFIDS/ME & FM Association name will not change.