Rainbow at shoreline

The Massachusetts CFIDS/ME & FM Association, a 501(c)3 founded in 1985, exists to meet the needs of patients with CFIDS (Chronic Fatigue and Immune Dysfunction Syndrome, also known as Chronic Fatigue Syndrome), ME (Myalgic Encephalomyelitis) or FM (Fibromyalgia), their families and loved ones. The Massachusetts CFIDS/ME & FM Association works to educate health-care providers and the general public regarding these severely-disabling physical illnesses. We also support patients and their families and advocate for more effective treatment and research.

Thursday April 7 and Friday April 8, 2011, 8 a.m. – 5 p.m.

This Workshop brought together top researchers to present a summary of the current state of research, diagnosis and treatments for ME/CFS. Impediments to research and opportunities for communication were discussed. Patient advocates have helped plan the agenda and also made presentations.

The meeting was videocast in its entirety and is archived for viewing after the event. Since this event is in the past, you need to go to the Past Events menu item on the left. On the new page, click on Conferences. On the far right, next to the horizontal list of pages, there is a tiny calendar icon. Click on it and choose either April 7, 2011 or April 8, 2011 and the correct video will be listed on the page.

Link to videocast:

Notice about names

The Massachusetts CFIDS/ME & FM Association would like to clarify the use of the various acronyms for Chronic Fatigue Syndrome (CFS), Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS) and  Myalgic Encephalomyelitis (ME) on this site. When we generate our own articles on the illness, we will refer to it as ME/CFS, the term now generally used in the United States. When we are reporting on someone else’s report, we will use the term they use. The National Institutes of Health (NIH) are currently using ME/CFS. The Centers for Disease Control and Prevention (CDC) are calling the illness CFS.

Until there is consensus on a name for the illness, the Massachusetts CFIDS/ME & FM Association name will not change.