Rainbow at shoreline

The Massachusetts CFIDS/ME & FM Association, a 501(c)3 founded in 1985, exists to meet the needs of patients with CFIDS (Chronic Fatigue and Immune Dysfunction Syndrome, also known as Chronic Fatigue Syndrome), ME (Myalgic Encephalomyelitis) or FM (Fibromyalgia), their families and loved ones. The Massachusetts CFIDS/ME & FM Association works to educate health-care providers and the general public regarding these severely-disabling physical illnesses. We also support patients and their families and advocate for more effective treatment and research.

The American Association of Blood Banking (AABB), on June 18, 2010, issued a Bulletin to its member blood collectors requesting that ME/CFS patients be actively discouraged from donating blood because of the "risk of transmission of XMRV" (Xenotropic Murine-Related Virus). In October, 2009 the journal Science published a study which presented evidence of an association of XMRV with ME/CFS. In making this recommendation, the AABB is concerned about the safety of the U.S. blood supply.  

[2015 editiorial note: Even though it was disproven in 2012 that ME/CFS patients are infected with XMRV, it is prudent to refrain from donating blood or tissue due to the high probability of being carriers of other infectitious agents. See p. 30 of ME/CFS: A Primer for Practicing Clinicians.]

Notice about names

The Massachusetts CFIDS/ME & FM Association would like to clarify the use of the various acronyms for Chronic Fatigue Syndrome (CFS), Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS) and  Myalgic Encephalomyelitis (ME) on this site. When we generate our own articles on the illness, we will refer to it as ME/CFS, the term now generally used in the United States. When we are reporting on someone else’s report, we will use the term they use. The National Institutes of Health (NIH) are currently using ME/CFS. The Centers for Disease Control and Prevention (CDC) are calling the illness CFS.

Until there is consensus on a name for the illness, the Massachusetts CFIDS/ME & FM Association name will not change.