The Massachusetts CFIDS/ME & FM Association, a 501(c)3 founded in 1985, exists to meet the needs of patients with CFIDS (Chronic Fatigue and Immune Dysfunction Syndrome, also known as Chronic Fatigue Syndrome), ME (Myalgic Encephalomyelitis) or FM (Fibromyalgia), their families and loved ones. The Massachusetts CFIDS/ME & FM Association works to educate health-care providers and the general public regarding these severely-disabling physical illnesses. We also support patients and their families and advocate for more effective treatment and research.
- Last Updated: 21 November 2015 21 November 2015
"Rest, Pacing and Stress: What Every ME/CFS Patient Should Know " by Sarah Myhill, MD. This article provides very helpful advice to patients on how to pace their activities to use and preserve their energy to stave-off relapses and promote recovery. The article recommends specific actions and guidelines to assist patients in their everyday life.
There are two points in the article which patients should notice. First, some of the guidelines are inflexible: it would be very hard to follow the suggestions as written. But if one takes the prescriptions as flexible guidelines, then they are very constructive.
Also, Dr. Myhill mentions that ME/CFS patients have a "personality" that can make them sick in the first place. This is not proven and the reader should try to ignore the statement in light of the benefit of the overall article.
Finally, Dr. Myhill cites dysfunction in the mitochondria as a primary element in ME/CFS. She includes includes links for summaries of some of her journal articles.
In one article there is a mention of heart failure in ME/CFS. Heart failure, in the common understanding of the term, has not been shown in ME/CFS.
Notice about names
The Massachusetts CFIDS/ME & FM Association would like to clarify the use of the various acronyms for Chronic Fatigue Syndrome (CFS), Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS) and Myalgic Encephalomyelitis (ME) on this site. When we generate our own articles on the illness, we will refer to it as ME/CFS, the term now generally used in the United States. When we are reporting on someone else’s report, we will use the term they use. The National Institutes of Health (NIH) are currently using ME/CFS. The Centers for Disease Control and Prevention (CDC) are calling the illness CFS.
Until there is consensus on a name for the illness, the Massachusetts CFIDS/ME & FM Association name will not change.