The Massachusetts CFIDS/ME & FM Association, a 501(c)3 founded in 1985, exists to meet the needs of patients with CFIDS (Chronic Fatigue and Immune Dysfunction Syndrome, also known as Chronic Fatigue Syndrome), ME (Myalgic Encephalomyelitis) or FM (Fibromyalgia), their families and loved ones. The Massachusetts CFIDS/ME & FM Association works to educate health-care providers and the general public regarding these severely-disabling physical illnesses. We also support patients and their families and advocate for more effective treatment and research.
- Last Updated: 25 November 2015 25 November 2015
By Pat Fero
(Courtesy of the Wisconsin ME/CFS Association)
The Sound of a Wild Snail Eating is the perfect book for me. The heft and print size are exactly right. It's not too large and heavy, it is not very long, and the print is very readable. The title causes me to ask the questions: If the snail is wild then who hears it eating? Is that even possible? Why write about a snail eating anyway?
The reviews say the book is “beautiful and moving and funny and sweet and wise and profound.” Did you know that Elisabeth Tova Bailey’s book has just been named to the top ten books of 2010 in Science & Technology by the American Library Association's Book List Editors?
Elisabeth wrote The Sound of a Wild Snail Eating for us . . . for those with Myalgic Encephalomyelitis and Chronic Fatigue Syndrome. It is a book written about "being" . . . about observing . . . and about escaping the confines of illness.
Elisabeth is bed bound, moved from her farmhouse to a studio apartment where she has caretakers. A friend sets a small pot filled with violets dug up from the woods beside her bed and says “I found a snail in the woods. I brought it back and it’s right here beneath the violets.” Elisabeth wonders why she would enjoy a snail and what on earth would she do with it? She is unable to get out of bed to return the snail outdoors. Yet, now she is responsible for this tiny living thing. The thought overwhelms her.
WHY? You know the answer. People with incapacitating ME and CFS can barely take care of themselves let alone another living creature. We are confined by illness and the challenges it brings are always with us.
Elisabeth writes on page 5: “When the body is rendered useless, the mind still runs like a bloodhound along well worn trails of neurons, tracking the echoing questions; the confused family of whys, whats, and whens, and their impossibly distant kin how…. Sometimes my mind went blank and listless; at other times it was flooded with storms of thought, unspeakable sadness, and intolerable loss.
I am hooked on this book. I understand what the author is feeling and I want to know more. What about the wild snail?
On page 6: “It was all I could do to get through each moment, and each moment felt like an endless hour, yet days slipped silently passed. Time unused and only endured, still vanished, as if time itself is starving, and each day is swallowed whole, leaving no crumbs, no memory, no trace at all.
Do you feel what she means? Our sense of seconds, hours, days, weeks, months and years change once this devastating illness has hold of us. What about the wild snail?
Chapter 2 is called Discovery. Elisabeth watches the snail. It is alive and moving slowly. On successive mornings, she sees small square holes in scraps of paper, postcards, and envelopes that had been propped against the lamp on the bed table. Thinking that the snail might need some other food, she places withered flowers at the base of the pot. The snail moves to eat. “The sound was of someone very small munching celery continuously…the tiny, intimate sound of the snail’s eating gave me a distinct feeling of companionship and shared space.”
Early on Elisabeth discovers that the snail can move a distance in her bedroom before returning to the flowerpot in the morning. What if someone stepped on its delicate brown shell? Caretakers find a glass terrarium and landscape it with moss, leaves and bits of native plants. Elisabeth reads that snails like to eat mushrooms and a portabella is placed in the “little green kingdom.”
There you have it. Elisabeth cannot get out of bed, but over months she has so many questions about the snail that she lives those questions.
Chapters weave Elisabeth's limits and lack of “functional capacity” with the phenomenal abilities and quiet habits of a snail. Snails live in small colonies, yet they each live very hermit-like lives. “I knew there were other people homebound from illness or injury, scattered here and there throughout rural towns and cities in the world. And as I lay here, I felt a connection to all of them. We too were a colony of hermits.”
Elisabeth Tova Bailey, an observer of Gastropods, read so many books and articles on snails, that she has become somewhat of an expert. On another level, Elisabeth is an expert on living with this devastating illness. It took her four years to write The Sound of A Wild Snail Eating.
I am still thinking about Elisabeth’s observations. This is a good read—realistic—but also inspiring. The book can help educate your family members, your doctor, and your friends about the reality of living with ME or CFS.
Please help spread the word, go to your bookstore, go online, or request The Sound of a Wild Snail Eating at your local library.
Notice about names
The Massachusetts CFIDS/ME & FM Association would like to clarify the use of the various acronyms for Chronic Fatigue Syndrome (CFS), Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS) and Myalgic Encephalomyelitis (ME) on this site. When we generate our own articles on the illness, we will refer to it as ME/CFS, the term now generally used in the United States. When we are reporting on someone else’s report, we will use the term they use. The National Institutes of Health (NIH) are currently using ME/CFS. The Centers for Disease Control and Prevention (CDC) are calling the illness CFS.
Until there is consensus on a name for the illness, the Massachusetts CFIDS/ME & FM Association name will not change.