Rainbow at shoreline

The Massachusetts ME/CFS & FM Association, a 501(c)3 founded in 1985, exists to meet the needs of patients with ME (Myalgic Encephalomyelitis), CFS (Chronic Fatigue Syndrome) or FM (Fibromyalgia), their families and loved ones. The Massachusetts ME/CFS & FM Association works to educate health-care providers and the general public regarding these severely-disabling physical illnesses. We also support patients and their families and advocate for more effective treatment and research.

Here are the links to the videos from the October 2012 Chronic Fatigue Syndrome Advisory Committee (CFSAC), held on Oct. 3-4.

These were posted on October 10, making them available MUCH sooner than the videocast of the spring meeting.  No notice was given by the CFSAC officials, however, not even an email to the CFSAC mail-list.  Thanks to advocates for finding these and listing the links!


Welcome & Opening Remarks (CFSAC Fall 2012)

http://www.youtube.com/watch?v=4Zl2RX4URuI&feature=plcp

Biomarkers - An Overview & Future Look (CFSAC Fall 2012)
http://www.youtube.com/watch?v=01hZYq4GMtI&feature=plcp

Public Comment on Day One - AM (CFSAC Fall 2012)
http://www.youtube.com/watch?v=oIGpfvfFZ1w&feature=relmfu

Agency Updates from HRSA, NIH, and FDA (CFSAC Fall 2012)
http://www.youtube.com/watch?v=buDxhejdg90&feature=plcp

FDA & Drug Development (CFSAC Fall 2012)
http://www.youtube.com/watch?v=IGASSh7YV3s&feature=plcp

Public Comment on Day One - PM (CFSAC Fall 2012)
http://www.youtube.com/watch?v=_fIEeQBdvxM&feature=plcp

Committee Discussion & Plans for Day Two (CFSAC Fall 2012)
http://www.youtube.com/watch?v=Fs1A6KhHInU&feature=relmfu

Opening Remarks & Agency Updates (CFSAC Fall 2012)
http://www.youtube.com/watch?v=PWBmqd8LDhg&feature=plcp

Social Security Administration (CFSAC Fall 2012)
http://www.youtube.com/watch?v=af_r5LiIjXQ&feature=relmfu

Public Comment on Day Two (CFSAC Fall 2012)
http://www.youtube.com/watch?v=qGb0U6EaI4o&feature=relmfu

ME/CFS Organizations (CFSAC Fall 2012)
http://www.youtube.com/watch?v=MTHpny0u-XU&feature=relmfu

A Path Forward (CFSAC Fall 2012)
http://www.youtube.com/watch?v=NFaXiiSdZqI&feature=relmfu

Finalize Recommendations (CFSAC Fall 2012)
http://www.youtube.com/watch?v=CO9bO-udcY0&feature=relmfu

Search results for "CFSAC":
http://www.youtube.com/user/USGOVHHS/videos?query=CFSAC

 

 

 

Notice about names

The Massachusetts ME/CFS & FM Association would like to clarify the use of the various acronyms for Chronic Fatigue Syndrome (CFS), Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS) and  Myalgic Encephalomyelitis (ME) on this site. When we generate our own articles on the illness, we will refer to it as ME/CFS, the term now generally used in the United States. When we are reporting on someone else’s report, we will use the term they use. The National Institutes of Health (NIH) and other federal agencies, including the CDC, are currently using ME/CFS. 

Massachusetts ME/CFS & FM Association changed its name in July, 2018, to reflect this consensus.