by John
Herd
Something very unique has been
taking place in the chronic fatigue syndrome (CFS/ME) community and it
reached a magnificent crescendo in September.
For a lucky group of people who have CFS/ME the isolation that the illness
can impose has been lessened by an idea Alison Petty had two years ago.
She has been living with the illness for the past ten years, but is
currently improving significantly after having had a severe CFS/ME relapse
three years ago. Alison created an Internet based organization and web
site she named the Brainfog Association <http://www.brainfog.org/> - the
name reflecting the cognitive problems so common to this illness. The site
is a place where those afflicted with CFS/ME can partake in fun
socialization and friendly support - sharing aspects of life that can feel
out of reach when partially or completely homebound. Though members may be
hundreds or thousands of miles apart very meaningful friendships abound in
the Brainfog Internet community - it feels like a warm on-line living
room.
The complete text of this article, along with photographs that enhance
this reading experience, is available from Co-Cure in PDF format at
http://www.co-cure.org/Herd.pdf .