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Coming Nov. 14, 2015 - Fibromyalgia and Small Fiber Polyneuropathy PDF Print E-mail

New research from Massachusetts General Hospital shows that about 40% of patients with fibromyalgia have abnormal skin biopsies that show small fiber polyneuropathy (SFPN). Several other research teams published similar data and confirmed these findings. Fibromyalgia shares many symptoms with small fiber polyneuropathy (SFPN), including wide-spread pain, reduced endurance, fuzzy thinking, frequent headaches, and sometimes GI or bladder symptoms.

“These findings suggest that some patients with chronic pain labeled as fibromyalgia have unrecognized SFPN, a distinct disease that can be tested for objectively and sometimes treated definitively” – Dr. Anne Louise Oaklander, Researcher at the MGH Nerve Unit

The Massachusetts CFIDS & FM Association Presents:

Fibromyalgia and Small Fiber Polyneuropathy
Khosro Farhad, MD
Newton-Wellesley Hospital
Shipley Auditorium in the Bowles Conference Center
November 14, 2015 at 1 PM

Dr. Farhad is a neurologist specializing in peripheral nerve. He is affiliated with the Massachusetts General Hospital Nerve Unit. He provides medical care for patients with fibromyalgia, small fiber polyneuropathy and other neuromuscular disorders. He can test patients for SFPN with a skin biopsy removed from the leg under local anesthesia. A positive test shows degeneration of the small fiber nerves. For patients newly diagnosed with SFPN, potentially treatable causes can be sought from the patient’s medical history and blood tests. The MGH team is conducting research on treatment options. The research suggests that SFPN might possibly be linked to some cases of ME/CFS.

The program will also include an overview of Fibromyalgia from the clinical perspective: presentation, diagnosis and treatments. 

Register now

Help publicize the event!  Get the flyer.

Online registration will close at midnight Thursday, Nov. 12, 2015. Walk-ins are always welcome.

Members are admitted free; for non-members and guests a $15 donation is suggested.

You can renew or become a member online.

Directions and parking information

CDC Funding Update: The Importance of Lobbying PDF Print E-mail

A month ago, patient advocate Jennifer Spotila discovered that the U.S. Senate was proposing to zero-out the ME/CFS budget at the Centers for Disease Control and Prevention. Read what has happened since.

New Medicare payment for chronic care management PDF Print E-mail

Beginning January 1, 2015, Medicare pays separately under the Medicare Physician Fee Schedule CPT code 99490, for non-face-to-face care coordination services furnished to Medicare beneficiaries with multiple chronic conditions. Learn more.

Links to recent U.S. government reports on ME/CFS PDF Print E-mail

Institute of Medicine report:
Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Redefining an Illness, February 10, 2015

National Institutes Of Health, Pathways to Prevention (P2P) Workshop report:
Advancing the Research on Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome, December 9–10, 2014

Agency for Healthcare Research and Quality, Research Review (“Evidence review”):
Diagnosis and Treatment of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, December 9, 2014

U.S. Food and Drug Administration, Patient-Focused Drug Development Initiative report:
Chronic Fatigue Syndrome and Myalgic Encephalomyelitis, September, 2013

National Institutes Of Health, State of Knowledge Workshop report:
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Research, April 7-8, 2011

Updated information on Medicare and MassHealth Programs PDF Print E-mail

With the present implementation of the federal Affordable Care Act (the new federal health care law), it is useful to review and update some of the eligibility requirements for medical benefits under Medicare and, in Massachusetts, for Medicaid and the Health Care Safety Net. Several of the eligibility cut-offs have been raised, so disabled patients may be newly eligible for health insurance benefits. Learn more.

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