DISABILITY HANDBOOK



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The information in this booklet is invaluable to those with CFIDS who cannot work and are seeking financial stability. At the present time the booklet is available free from the website. However, if you can afford it, we would appreciate a free will donation of $10 or $20 since we as an organization have expenses we must meet in order to make this booklet available.

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Table of Contents

Introduction

Eligibility for Social Security Disability Programs

Disability Eligibility Standard for SSDI and SSI

Financial Eligibility Standards for SSDI

Financial Eligibility Standards for SSI

Emergency Aid to the Elderly, Disabled & Children Program (EAEDC)

Food Stamps and Fuel Assistance

 

How to Apply for Social Security Benefits if You Have Chronic Fatigue Syndrome

I. The Application Process

II. When to Obtain a Lawyer

III. When to Apply for Disability

IV. Your Doctors’ Letters to Social Security

Letters from Your Primary Care Physician

Obtaining a CFS Diagnosis

An Explanation of the 1994 Centers for Disease Control CFS Case Definition

Documenting the Diagnosis to Social Security

The 1999 “Social Security Ruling…Evaluating Cases of Chronic Fatigue Syndrome”

Letters from Your Primary Care Physician (continued)

Supplementary Diagnostic Materials

Documenting Your Inability to Perform Tasks

Cognitive Dysfunction: Its Limiting Effects on a PWC’s Ability to Work

V. Your Description of the Disabling Effects of Your Illness

VI. Contacting your Congressman about your Social Security Disability Application

 

Appendix I: Diagnosing the illnesses

The official Diagnostic Criteria for CFS (CFIDS) And Fibromyalgia

 

Appendix II: Helping Your Doctor Document Your Illness to Social Security  

(and to other Disability Carriers)

A.     Memo from Bernard A. Kansky, Esq.; Recommended documentation of CFS Disability Claim to be Submitted to Social Security and/or for Private/Employer Disability

B.     Checklist of CFIDS Symptoms

C.     Some Tests to be Conducted to Help Determine Objectivity of CFS/CFIDS and/or Disabling Symptoms

D.     Excerpts from previous Social Security Administration Documents which provide guidelines for documenting CFS disability.

Excerpts from “Documentation for the Social Security Administration’s Adjudication of Disability Claims Involving the Chronic Fatigue Syndrome.” 1997.

Excerpts from the Social Security Fact Sheet – publication #64-063:

“Providing Medical Evidence to the Social Security Administration for Individuals with Chronic Fatigue Syndrome - A Guide for Health Professionals”

E. Incapacity Checklist

F. Sample Doctor’s Letters Documenting CFS Disability

G. Helping Your Doctor Prepare Your Medical Report

 

Appendix III: How to Prepare for an Administrative Law Judge Hearing (3rd Stage)

3 Memos from Attorney Bernard Kansky.

Updated (1994) Specific Suggestions on Preparing for the Social Security Hearing

Necessary Elements in Preparation for Social Security Appeal Hearing of a CFS Disability Case and Further Suggestions

 

Appendix IV: The Use of a Diagnosis of Depression or Other Mental Impairments in a CFIDS Social Security Application

Introduction

A.     The “Legal Services” Position: The positive use of secondary depression and mental impairment in a disability application.

 

Problems which may develop between CFS patients and their attorneys regarding documentation or submission of mental impairment, diagnoses.

 

Issues of cognitive dysfunction and neuropsychological testing

 

B.     The case for avoiding, if possible, the use of depression or other mental impairment diagnosis a CFS disability application.

 

Appendix V: Landmark Federal Court Decision Establishes Right of Persons Diagnosed with and Disabled by CFIDS to Obtain Social Security Benefits. Additional Federal Court decisions granting CIDS and fibromyalgia disability claims.

 

Appendix VI: Disability Case Reviews

 

Appendix VII: Other Disability Insurance Programs

I. .Disability Insurance through Your Employer

II Disability Retirement Benefits for State Employees and Teachers (Massachusetts)

 

Addendum I: Plans for Achieving Self-Support While Receiving Supplemental Security Income

 

Resource List:

Important Articles on Disability from the CFIDS Association

 


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Last Updated on: 02/18/2005

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