The CFIDS Association of America's system of Advocacy Alerts provides
patients with the opportunity to join in organized advocacy efforts to
lobby for research, education, and other critical CFIDS issues. By going
to this link, you will be able to see the latest alerts and news. Also you
may sign up to receive breaking alerts directly by clicking on the "CFIDS
Activist" link and signing up.
>> SEND A LETTER
<<
Write to Congresspersons, representatives and other officials!
Please click the
following button for a sample letter
Just before Awareness Day is an especially important time to write to
your Senators and Congressperson! You can also write anytime you
wish to express our need for Government help. Your letters make a
difference! You can use the sample letter (above) as a guide. Also
use the links to your representatives, just above.
May 12 is designated as
International Awareness Day for CFIDS/ME/ and FM. Your letter should
describe your own experience with these illnesses, as well as the need
for national recognition and research funding for both CFIDS/ME and FM.
May 1, 2005
FMS/CFIDS MILLION LETTER CAMPAIGN
Help Increase Awareness of
Fibromyalgia and CFIDS. Pattie Caprio and Dominie Soo Bush, two
women whose lives have been changed by Fibromyalgia, have begun a
letter-writing campaign to increase national awareness of Fibromyalgia
and chronic fatigue syndrome before the next Fibromyalgia Awareness Day
on May 12, 2005. The goal of the campaign is to send one million letters
on May 1, 2005, to various news outlets and the White House in time for
Fibromyalgia Awareness Day.
Links to the
Chronic Fatigue Syndrome Advisory Committee
The following links will take
you to sites containing information from the federal CFS Advisory
Committee. It exists within the federal Department of Health and Human
Services.
Its stated mission is to develop public policy on CFIDS and to
coordinate efforts of the government toward research, education, and
disability assistance.
Health Administration
Responsibility Project- HARP is a resource
for patients, doctors, and attorneys seeking to establish the liability of
Managed Health Care Organizations and Nursing Facilities for the
consequences of their decisions.
ERISA Outline -
(Employee Retirement Income Security Act of 1974)
