Advocacy


 

Grassroots Action Center Listserv Alerts: http://cfids.org/advocacy/alert-digest.asp

The CFIDS Association of America's system of Advocacy Alerts provides patients with the opportunity to join in organized advocacy efforts to lobby for research, education, and other critical CFIDS issues. By going to this link, you will be able to see the latest alerts and news. Also you may sign up to receive breaking alerts directly by clicking on the "CFIDS Activist" link and signing up.


>> Send a Letter <<

Write to Congresspersons, representatives and other officials!

Please click the following button for a

Write To Congress


State Senators and Representatives of Massachusetts by City and Town


May 12

International CFIDS Awareness Day

Just before Awareness Day is an especially important time to write to your Senators and Congressperson! You can also write anytime you wish to express our need for Government help. Your letters make a difference! You can use the sample letter (above) as a guide. Also use the links to your representatives, just above.

CFIDS Awareness Day Homepage - (R.E.S.C.I.N.D.)

CFIDS Awareness Day - (CFIDSAA)

May 12 is designated as International Awareness Day for CFIDS/ME/ and FM. Your letter should describe your own experience with these illnesses, as well as the need for national recognition and research funding for both CFIDS/ME and FM.


Links to the Chronic Fatigue Syndrome Advisory Committee

The following links will take you to sites containing information from the federal CFS Advisory Committee. It exists within the federal Department of Health and Human Services.

Its stated mission is to develop public policy on CFIDS and to coordinate efforts of the government toward research, education, and disability assistance.

Chronic Fatigue Syndrome Advisory Committee

CFSAC Meeting Transcripts

CFSAC Charter


Other Advocacy Related Links

Health Administration Responsibility Project - HARP is a resource for patients, doctors, and attorneys seeking to establish the liability of Managed Health Care Organizations and Nursing Facilities for the consequences of their decisions.

ERISA Outline - (Employee Retirement Income Security Act of 1974)

Judy Morris MD (Information concerning issues relating to private disability insurance)

R.E.S.C.I.N.D. (Repeal Existing Stereotypes about Chronic Immunological and Neurological Diseases)


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