In Massachusetts
the Registry of Motor Vehicles offers handicapped placards
for people with CFIDS who qualify as sufficiently disabled.
The placard allows
for parking in designated handicapped parking areas. The
placard also allows free parking at meters in Boston (check
regulations for other cities and towns). These benefits
can be quite important for those who are sufficiently disabled
as to need the ability to park closer to supermarkets, places
of business, etc.
To apply for
a placard or plate (the placard is mobile, so it can be
used in different cars), a person with CFIDS must have his
or her physician complete a Registry form. The two most
important criteria of eligibility as related to CFIDS are
as follows: (1) the doctor must state the diagnosis and
nature of the impairment which would be to confirm the CFIDS
diagnosis. The doctor would also provide information on
the prognosis of the illness (how long it is expected to
last) and on its severity; (2) The doctor must confirm that
the patient cannot move more than 200 feet. The Registry
emphasizes that the mobility issue is of prime importance
and must be documented by the physician. If the Registry
gets only partial information, it will have to ask for a
more complete evaluation. The essential focus for approval
is for the physician to explain exactly how the patient
is impaired: how easily, quickly, or unexpectedly the patient
tires, and the extent of weakness and its direct effect
on the lower extremities.
Note: With many
patients, there are some days a person might be able to
walk the 200 feet, but then suffer substantial after-effects
-- including relapse of substantial symptoms -- so walking
the distance is medically too risky. Again, the person might
be able to walk the distance on some days and not on others,
so the person should have the placard; or the distance might
be walked but only under conditions of suffering. All these
points should be taken up with the persons physician before
submitting the Registry form.
Nothing should
be submitted to the Registry which might be construed as
a medical reason for questioning the persons ability to
drive safely.