Harvard Researcher and Sleep Expert, Dr. Jo Solet, presented "The Science of Sleep" at Spring 2013 Lecture on April 6th. Read the summary of her talk and also see Dr. Solet's list of Tips for Sleep and Fatigue Management in CFIDS/ME & FM.
NEW - The video of the lecture is now available Dr. Jo Solet Spring 2013 Lecture.
Advocacy - Open Letter to Kathleen Sebelius, U.S. Secretary of Health and Human Services (HHS) For those who are following the Chronic Fatigue Syndrome Advisory Committee (CFSAC) progress, there is little. There seems to be no forward movement or recommendations that move up to Secretary of Health & Human Services Sebelius' office. At the Spring 2013 meeting, the CFSAC committee recommended that HHS accept the Canadian Consensus Criteria (CCC) and the Primer put out by the International Association of Chronic Fatigue Syndrome/ Myalgic Encephalomyelitis (IACFS/ME). A large group of thirty-five national and international CFS/ME researchers/clinicians have signed onto an open letter sent to Secretary Sebelius pressing the requests to accept the CCC. Read the entire letter: An Open Letter to Kathleen Sebelius (HHS). The letter was re-issued with additional signatures on October 25, 2013.
Advocacy - A thank you letter to the signatories of the Open Letter (see above) sent to Health & Human Services Secretary Kathleen Sebelius has been created by Mary Dimmock as a petition at Thank You to ME/CFS Experts Petition. The open letter had thirty-five esteemed signatures of leading ME/CFS experts who joined forces and in one voice, spoke out directly opposing the government on behalf of the ME/CFS community requesting the Canadian Consensus Criteria (CCC) be used as a definition. Signing this thank you as an individual is a gesture that lets them know their efforts were appreciated.
The Massachusetts CFIDS/ME & FM Association has not taken a position on this petition.
Pathogenesis Study pending publication - The Centers for Disease Control and Prevention (CDC) Chronic Fatigue Syndrome (CFS) Patient-Centered Outreach and Communication Activity (PCOCA) held its second conference call for this year, on September 10, 2013. Dr. W. Ian Lipkin, a world-renowned scientist, provided a preview of initial results from a very large and promising study, supported by the Chronic Fatigue Initiative. Soon to be published ME/CFS research project expected to provide valuable data.
A Conversation with Erica Verrillo - The Massachusetts CFIDS/ME & FM Association enthusiastically welcomed Erica Verillo, author of Chronic Fatigue Syndrome: A Treatment Guide, 2nd Edition, on Saturday, May 18, 2013, in Sturbridge, MA. Read a summary of the talk.
New CME course: A Case-Based Approach to Chronic Fatigue Syndrome
This 30-minute online course featuring clinicians Lisa W. Corbin, MD; Anthony L. Komaroff, MD; Benjamin H. Natelson, MD; and Peter C. Rowe, MD, was published on April 19, 2013 and is available for CME/CE credit until April 19, 2014, and also available to the public. Free registration on the Medscape website is required in order to view this course.