March 11: Next CFSAC Webinar
A Chronic Fatigue Syndrome Advisory Committee (CFSAC) Webinar
March 11, 2014 from 12:00-5:00 PM Eastern Time.
The webinar's main purpose is to have more discussion around the potential recommendations coming from the two workgroups. We will provide an opportunity for those who had been scheduled for the December 10 public testimony (cancelled because of weather) to give their testimony. We will also have reports from the agencies who weren't able to give their report during the December webinar. Additionally, the Committee will discuss recommendations to be presented by its “Education for CFS/ME” and “ME/CFS Researcher and Clinician-Scientist Recruitment” Workgroups.
The webinar instructions will be posted on the CFSAC website.
If you’d like to have CFSAC notices and updates sent directly to your email address in future, you can sign up for the CFSAC listserv at http://www.hhs.gov/advcomcfs/cfsac_email_list.html.
March 26: FDA Fibromyalgia Patient-Focused Drug Development (rescheduled from Dec. 10, 2013)
Patient stakeholders are invited to attend an upcoming public meeting on fibromyalgia, part of FDA’s Patient-Focused Drug Development initiative. The goal of the meeting is to hear patient perspectives on symptoms of fibromyalgia that matter most to patients and on current approaches to treating fibromyalgia.
The patient voice is integral to FDA’s Patient-Focused Drug Development initiative. We encourage you to reach out to your peers, patients, and other patient stakeholders to spread the word by forwarding on this email and sharing through social media.
Please note that you must re-register for this meeting even if you registered for the originally scheduled meeting in December 2013. You may attend in person or via webinar. Registration for this meeting closes on March 20, 2014.
Details are below.
For more information and to register, refer to the meeting website.
Date: March 26, 2014
Time: 1:00 pm – 5:00 pm EDT
Location: FDA White Oak Campus, 10903 New Hampshire Avenue, Silver Spring, MD
Mitochondrial Dysfunction, Post-Exertional Malaise and CFS/ME
This extensive review, written for both lay and professional readers, explains the role of mitochondria in cellular function and describes the characteristics and consequences of mitochondrial dysfunction fatigue in skeletal muscle. Illnesses with mitochondrial dysfunction are reviewed, including CFS/ME. Some treatments that are used are also described, as well as notes regarding exercise for patients with CFS/ME. There is an extensive bibliography.
Dental caries and oral problems have a strong and proven link to poor salivation and persistent dry mouth. Dry mouth and various oral and dental complications are problematic for many people with Chronic Fatigue and Immune Dysfunction Syndrome/Myalgic Encephaloyelitis (CFIDS/ME), and/or Fibromyalgia (FM). Persistent dryness could indicate an autoimmune illness like Sjögren's, linked to poorly functioning or damaged salivary glands, or be the result of side effects associated with many medications. Either way, it is a serious problem that warrants prompt medical or dental attention. Read more at Oral Complications in Sjögren's Syndrome and Chronic Dry Mouth.
Newsletters are now online!
Starting in January 2014 the monthly newsletter can be accessed online. Find links to important research, announcements of upcoming events, advocacy updates, coping tips, and more... Go to About Us - Newsletters.
New CME course: A Case-Based Approach to Chronic Fatigue Syndrome
This 30-minute online course featuring clinicians Lisa W. Corbin, MD; Anthony L. Komaroff, MD; Benjamin H. Natelson, MD; and Peter C. Rowe, MD, was published on April 19, 2013 and is available for CME/CE credit until April 19, 2014, and also available to the public. Free registration on the Medscape website is required in order to view this course.