There is much information available to help families with children and youth who have CFS/CFIDS/ME. We have listed here some of the best resources, arranged by topic. Each of these links will open in a new window so that you can easily return to this page to follow other links.
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Understanding CFS/CFIDS/ME in youth—General information
Diagnosis of CFIDS in youth
Until 2006 there were no internationally accepted criteria for CFS/CFIDS in children and adolescents. For adults there were several sets of criteria, somewhat competing, but with enough overlap to provide fairly reliable bases for diagnosis. The criteria for ME were somewhat more narrow but again with a fair amount of overlap with CFS. Without generally accepted criteria research studies can not be comparable so it was vital that there be such criteria for children and young adolescents— in whom the illness varies somewhat from that in adults. In 2006 Leonard Jason, PhD, together with a committee made up of physicians and researchers from several countries, published such pediatric criteria as a case definition, along with questionnaires for children and for parents to help arrive at a diagnosis. This was a very important step.
Impact of CFIDS on child and family
Coping in School
- Educating the Child with CFS —Newsletter published by the New Jersey Chronic Fatigue Syndrome Association, Inc.
- Parents Share Ideas For Educational Planning —Fibromyalgia Support Network, original article from The Pediatric Network
- The Emotions of Parenting a Child with CFS —Fibromyalgia Support Network, original article from The Pediatric Network
- Youth: Tips for Parents—CFIDS Association of America
- A Parent's Guide to CFIDS: How to Be an Advocate for Your Child With Chronic Fatigue Immune Dysfunction, by David S Bell, Bonnie Floyd, Jean Pollard, and Mary Robinson (Hardcover - Mar 8, 1999)
- Harnessing the Wind: Chronic Fatigue Syndrome and My Son, by Shanon McQuown (Paperback - May 17, 2005)
A Son's Road to Recovery
Depression and a Success Story
Developmental Issues in Adolescents with CFIDS - A Parent's Thoughts
Planning Ahead for Next School Year
Teenage CFIDS - A Personal Story